An interesting week

I’ve had an interesting week; Tuesday night through to yesterday (Wednesday) evening, I experienced horrible stomach cramps and my stoma stopped working. I called my GP for a phone consult and she did a home visit (because she didn’t want me to walk upto the surgery) to listen to my gut and check I wasn’t distended. Typically, my stoma started working about half an hour before she arrived at my flat, but she said my gut didn’t sound blocked. It didn’t, however, sound quite right to her either so she said to drink plenty and to only eat when I felt like it. I didn’t have much of an appetite yesterday but it seems whatever was causing the cramps has passed because the blobs been active all day today and I’ve been eating little meals throughout the day too. Doctor said to call if the cramps start again so I’ll need to keep an eye on things.

Other than that, I feel OK in myself. I’m sleeping a little better and I’m wanting to move around. I’m getting a little restless sitting at home all day everyday so I’m planning on going out for lunch with my mum tomorrow. I just hope the weather is nice and that I can manage the walk.

Another update

I finished my work week! I’m really looking forward to tomorrow; I’m doing absolutely nothing at all except sleeping. I’m meant to be going for dinner at my fiance’s parents in the evening but I’ll have to see how I’m feeling. Hopefully the sleep will help me feel well enough to go. I haven’t seen them in a long time and it’d be nice to spend time somewhere other than my flat or work.

Monday is the start of my seven day working week so I’m trying to conserve spoons. I should be ok but I’m going to keep a very close eye on my fatigue and if I need to, I guess I could ask to go home early.

As for my infection, I don’t feel like the antibiotics are doing much; I’m still going around eight times a day and it’s not what you’d call of a “normal” consistency. I’m going to call the helpline tomorrow so I’ll be able to talk to the nurse Monday and get some advise.

I’m a little annoyed with myself today because yesterday I was feeling a lot better compared to Wednesday (in that I didn’t look like death and could actually go more than an hour with having to use the bathroom) but this morning I felt like I’d been hit by a truck; I didn’t sleep as well as the night before and my BM were looking like they’d be every hour again. Thankfully, things seem to have settled now but my stomach muscles are really soar so I’m back to taking paracetamol and codeine, at least for today.

I’m hoping the antibiotics I’m taking for the infection will kick in soon so my weekend of working goes as painlessly as possible. I’ve got Monday and Tuesday off, though, so I can catch up on my sleep. To be honest, I think that’s what I’m really needing; sleep. So, my plan for when I get back from my appointment on Monday is to build a spoonie-nest of blankets and pillows on my sofa and just dose the afternoon away.

I’ve called the helpline. I know they won’t really be able to do a lot because I have my appointment with my GI next Monday, but I just feel like I need to talk to a nurse; the last few days haven’t been good.
I have to have a blood test at the hospital too so I’m going to be busy this morning. I’m not planning on doing a lot this afternoon though; I’m not sleeping enough so I might try and have a nap after lunch.

I have my next humira doses tomorrow but I have no idea when the nurse is meant to come round. I’m guessing they’ll arrive anytime after 8am but I really have no idea. I’m getting up early anyway, just in case, so I really hope I get a decent amount of sleep tonight.

Had a very successful dinner with a friend I haven’t seen in ages. I made a mango chicken stir-fry, and then had hot gluten-free brownies with vanilla ice cream and homemade toffee sauce for pudding.

So far, my gut is behaving. Now, I’m off to bed for some well-earned sleep.

Feeling pretty fragile this evening; they forgot to prescribe me my lunchtime meds so I ended up not taking them (even after I mentioned I needed to take them) and now I feel bloated and uncomfortable. I’ve told the nurse so hopefully they give me something to help, and with a bit of luck, I might get some more sleep tonight too.

Been feeling pretty crap this week. It’s been just under two weeks since I finished the prednisolone and I knew I’d have a few withdrawal symptoms like maybe a bit of stomach pain, but I’m still feeling like I’m on the verge of a flare up which is only just being kept at bay by the mercaptapurine.
I’ve been going to bed early and practically falling asleep as soon as my head hits the pillow but when it’s time to get up, I feel like I’ve barely slept at all so I think I’m crashing.
I keep getting cramps in my left side which feels like period pain sometimes (even though it’s not because I’m on the Pill).
On top of that, everything I eat makes me bloat, regardless if it gluten free or not.
At least I only have one more day of work this week.
I have a Fifth Edition session on Sunday afternoon which I’m looking forward to but at the same time wish was another day because I just want to be able to sleep all day Sunday.

I’ve eaten too much again!

I did the stupid thing and had a big dinner instead of a smaller one. I think I’ll need to eat smaller meals for a while; my stomach has bloated and is a little painful and I’ve also had quite a bit of gluten over the last couple of days which doesn’t help with the bloat.

It’s annoying that I keep wanting to just eat the things that I know aren’t good for me! I’m trying really hard to avoid as much gluten as I can (although I know I don’t need to avoid it completely), as well as listen to my gut and stop eating when it tells me I’m full. Problem is, I think my appetite has increased more recently so I’m feeling like I’m hungry when I’m not. Maybe I should drink more and then I might not feel hungry for food as much. I have read that the feeling of thirst is usually mistaken for the feeling of hunger so maybe that’s it?

I’ve also developed a slight addiction to Arizona branded Iced Tea. It’s really refreshing and the cans last me a good few hours each. I think I’ll have to stock up on them and maybe invest in some low calorie/gluten-free snacks. I’ve found most crisps are gluten-free but are also high in calories/low in nutritional value so I probably shouldn’t eat too many. I haven’t made any gluten-free brownies for this week but I will likely make a batch next week when I have more time/spoons to do so.

Anyway, I think an early night is in order so I can digest all the rubbish I’ve eaten today and get enough sleep so I can get up for work tomorrow. It’s a good week off but I really wish I wasn’t going back to work yet; I just want a day where I don’t have to do anything; I’ve done something every day since I’ve been off work so it doesn’t feel like I’ve stopped really. I think the few hours I spent at the hospital, having my infusion, were the first I’ve spent not doing anything this whole week! Hopefully, it means I’ll sleep better. I can only hope.