Gym update

whatcanieat:

I spent longer there this time; closer to an hour, and I did extra leg weights on machines I’d never used before, as well as spending longer on the cross-trainer. I’m quite proud of myself for not stopping as soon as I got tired, even if my legs are now a little achy. I met with two of my colleagues who do weights quite a bit so I think when I go again, I’ll try and go with them as they to push me to lift more which is good because it’ll build my strength up rather than just staying where I know I can lift comfortably.

Lazy Sunday

whatcanieat:

I’ve had a pretty lazy day today; I got up late (10am is late for me), did some housework but not much, had lunch and have been chilling on Youtube and playing Sims for most of the afternoon. I’m meeting with some work colleagues a little later to go to the gym for a (hopefully) gentle work out. I’ve re-established my membership for the time being as last Tuesday’s session went quite well, and I’m determined to get back into a semi-regular work out. I won’t do too much today but I will try and push myself a little more than last time.

As for my symptoms, my stomach is a little bloated (I’ve been mostly snacking today), but there’s no pain at the moment so that’s a bonus. I haven’t drank enough today but I’ll make up for that when I go to the gym.

And for those of you who are interested, our pet rats, Ysrela and Zynaida, are being super cute and snuggling up together in their tunnel. They have taken to sleeping in it recently, even though they have the hammocks (which they’ve chewed a whole through the lining of).

whatcanieat:

crohnsbae:

whatcanieat:

It seems no matter what I eat, I get bloated. I’ve kept to my gluten-free diet and eaten small meals but nothing seems to work. I hope it’s not because of the reduction in steroids; I’m on 5x 5mg per day now, going down to 4x 5mg next week. I’m starting to get anxious that I only stay in remission when I’m on the prednisolone and that the mercaptopurine and remicade won’t work on their own.

That’s exactly how I felt in the beginning and still feel now. The gluten-free diet works for some people, but it honestly never made a difference for me. The prednisone should help, but sometimes it takes a while. My last flare responded well to prednisone in the beginning, but it stopped working as well and I’ve been just teetering on the edge, not really fully flaring but not in remission for months now. I think it’s all about finding a good treatment like remicade or entyvvio to get back into complete remission. I’m on 6Mp now, and it’s made a big difference, but I’m still just right on the edge. I think you should start to (hopefully) feel better in a little while. It honestly just takes medicine a while to catch up with you sometimes. I know 6MP takes 3-6 months to even start working. I hope you feel better soon!

Thank you. I’ve been on 6MP for about a month now and the steroids I’m half way through (four out of eight weeks). I’ve got my third remicade infusion in just over two weeks which I’m actually looking forward to as the last one made me feel quite a bit better for at least a few days.

whatcanieat:

It seems no matter what I eat, I get bloated. I’ve kept to my gluten-free diet and eaten small meals but nothing seems to work. I hope it’s not because of the reduction in steroids; I’m on 5x 5mg per day now, going down to 4x 5mg next week. I’m starting to get anxious that I only stay in remission when I’m on the prednisolone and that the mercaptopurine and remicade won’t work on their own.

whatcanieat:

Ok, today isn’t going quite as well as I’d have hoped; my side started hurting this morning for no reason which is usually a sign I’ve eaten something I shouldn’t. I had a really bad, almost stabbing pain in my gut when I got up this morning, and for whatever reason everything is annoying me today. It doesn’t help that the hospital have now cancelled my referral appointment and not given me a new one so I don’t know if I still need it or not, which means I’ll need to call them on Monday to try and get it sorted. Sometimes, I just wish I hadn’t got out of bed.

Happy day

whatcanieat:

The week is almost over (I still have to work tomorrow) but I’ve been ok; I’ve eaten normally and not had much in the way of cramps and no rushes to the bathroom. (Yay! ) This probably means my cocktail of daily medication is working but I guess we’ll review that in four weeks when I finish the prednisolone.
I haven’t been having the best nights sleep this week but I’ve at least slept some and still been able to function at work. It’s only this evening that I’m feeling really tired.
I’ve put in for more meds from my doctor this week as the hospital only gave me one months supply but I’ll hopefully have enough to keep me going until I finish the steroids. I think I only need to be taking the Adcal-D3 and folic acid whilst on taking the them anyway.
So, it looks like positive vibes are back and staying put for now. Having the rats has really helped as they’ve given me something to distract me from myself but also brought quite a bit of energy and life to our flat; they run around playing most of the evening and all night, and are the most adorable things ever.
On top of that, there’s less than two weeks until I go to Lincoln to visit my sister. I’m so excited to be going to one of my favourite cities to see one of my favourite people in the world; it’s been too long.

whatcanieat:

Having a good week so far. I feel a lot better and I think it’s because I’m being really careful with my food and actually listening to my body. I have a terrible habit of ignoring warning signs so I’m glad I’m able to recognise them and act on them now. Also, the addition of fur-babies has helped a ton.