It seems no matter what I eat, I get bloated. I’ve kept to my gluten-free diet and eaten small meals but nothing seems to work. I hope it’s not because of the reduction in steroids; I’m on 5x 5mg per day now, going down to 4x 5mg next week. I’m starting to get anxious that I only stay in remission when I’m on the prednisolone and that the mercaptopurine and remicade won’t work on their own.
That’s exactly how I felt in the beginning and still feel now. The gluten-free diet works for some people, but it honestly never made a difference for me. The prednisone should help, but sometimes it takes a while. My last flare responded well to prednisone in the beginning, but it stopped working as well and I’ve been just teetering on the edge, not really fully flaring but not in remission for months now. I think it’s all about finding a good treatment like remicade or entyvvio to get back into complete remission. I’m on 6Mp now, and it’s made a big difference, but I’m still just right on the edge. I think you should start to (hopefully) feel better in a little while. It honestly just takes medicine a while to catch up with you sometimes. I know 6MP takes 3-6 months to even start working. I hope you feel better soon!
Thank you. I’ve been on 6MP for about a month now and the steroids I’m half way through (four out of eight weeks). I’ve got my third remicade infusion in just over two weeks which I’m actually looking forward to as the last one made me feel quite a bit better for at least a few days.
Tag: ulcerative colitis
It seems no matter what I eat, I get bloated. I’ve kept to my gluten-free diet and eaten small meals but nothing seems to work. I hope it’s not because of the reduction in steroids; I’m on 5x 5mg per day now, going down to 4x 5mg next week. I’m starting to get anxious that I only stay in remission when I’m on the prednisolone and that the mercaptopurine and remicade won’t work on their own.
Ok, today isn’t going quite as well as I’d have hoped; my side started hurting this morning for no reason which is usually a sign I’ve eaten something I shouldn’t. I had a really bad, almost stabbing pain in my gut when I got up this morning, and for whatever reason everything is annoying me today. It doesn’t help that the hospital have now cancelled my referral appointment and not given me a new one so I don’t know if I still need it or not, which means I’ll need to call them on Monday to try and get it sorted. Sometimes, I just wish I hadn’t got out of bed.
Happy day
The week is almost over (I still have to work tomorrow) but I’ve been ok; I’ve eaten normally and not had much in the way of cramps and no rushes to the bathroom. (Yay! ) This probably means my cocktail of daily medication is working but I guess we’ll review that in four weeks when I finish the prednisolone.
I haven’t been having the best nights sleep this week but I’ve at least slept some and still been able to function at work. It’s only this evening that I’m feeling really tired.
I’ve put in for more meds from my doctor this week as the hospital only gave me one months supply but I’ll hopefully have enough to keep me going until I finish the steroids. I think I only need to be taking the Adcal-D3 and folic acid whilst on taking the them anyway.
So, it looks like positive vibes are back and staying put for now. Having the rats has really helped as they’ve given me something to distract me from myself but also brought quite a bit of energy and life to our flat; they run around playing most of the evening and all night, and are the most adorable things ever.
On top of that, there’s less than two weeks until I go to Lincoln to visit my sister. I’m so excited to be going to one of my favourite cities to see one of my favourite people in the world; it’s been too long.
Having a good week so far. I feel a lot better and I think it’s because I’m being really careful with my food and actually listening to my body. I have a terrible habit of ignoring warning signs so I’m glad I’m able to recognise them and act on them now. Also, the addition of fur-babies has helped a ton.
Went to the gym for the first time in eight months this morning! I only did forty minutes of gentle exercise but I’m quite proud of myself. I feel like today is going to be a good day.
Napstablook sending you a medicine reminder! 😀
Such a cute, seasonal reminder.
Had a good day
Aside from the wasp sting, I’ve had a good day; had my blood test, got all my food shopping done, baked two lots of brownies and prepared chocolate mousse to put on top tomorrow, and even got dinner ready before 5pm.
The rats have been quite quiet today but they are starting to be a bit more lively now that it’s evening.
The stomach has been ok so today and my cold is all but gone. I’ve got another day off work tomorrow so I’m thinking, because I’m feeling a lot better, I might try a gentle gym session tomorrow morning. Might. I don’t want to push myself so if I do, it’ll be a light workout for no more than an hour. I want to see what I can do but not push myself too much that I end up making myself ill. Fingers crossed I still feel ok tomorrow.
Hey y’all. It’s been a week since I started this blog and just over a week since I started posting on my main blog about this project. And while I got a few testimonials and followers the first few days, I’ve had practically no activity in the last couple of days.
SiM isn’t something that I’m going to let fall by the wayside. I want to make these changes at my school whether or not SiM takes off as a more widespread initiative. But I also want SiM to be as far reaching as possible. We can’t change stigma in medicine unless we are fighting that stigma in more than 1 place. Doing this just at my school isn’t going to change things for anyone but optometry students who are able to go to Boston.
I can’t do this on my own. I’m literally one person who is in graduate school trying to do this. I can’t change institutions of higher learning/medicine by myself. I can’t go to every optometry, dental, nursing, and PA school to implement the changes I’ll be trying to make at my school. I can’t create my own testimonials to demonstrate why SiM is so needed and important. So please, spread the word about SiM. If we don’t get the word out, change can’t be made.
Reblogging to spread the word but to also ask anyone who may be able/want to help to please do so.
Monday morning
What a great way to start the day; just been stung on my knee by a wasp. It’s pretty painful but it should stop after a few hours. At least I’m going to the hospital so I’ll be in the right place if I have a bad reaction.
Only one more early blood test for 6MP after today then it’s every two weeks for six before I only need them every eight.
I’m looking forward to being able to lay in on my days off.
My plan today is to have my blood test (maybe get some cream for my sting), do some food shopping then go home to make more bracelets. Possibly (Re: definitely) play with the rats too.
What Can I Eat 