I didn’t sleep as well last night but I did sleep at least. I haven’t needed painkillers all night or at all today, and they’ve finally removed the NG tube. I’m now on free fluids and, so far, no pain nor vomiting. The doctor seems pretty happy and he said I might be able to try solids tomorrow but we’ll see; I don’t want to do too much before I’m ready.
human: *gentle “owl” hooting*
actual owls: *tiny velociraptor screams*
Nothing at all to do with IBD (obviously) but I found this adorable and felt compelled to share. It’s important to find joy in small things, especially when you are unwell or recovering.
I slept much better last night so I am feeling a lot better today. I’m still on TPN and it looks like they’re going to continue that over the weekend (the nutrition doctor said they want to up the calories I’m taking in). They’ve closed off the NG tube but it’s still in just in case. Nothing is coming out of it but it’s making my nose run so I’m going through tissues like a mad woman.
Overall, no pain so far today, not even when my stoma is doing stuff. I haven’t had a IV paracetamol since this morning because I didn’t feel I needed it this afternoon.
I’m currently enjoying not being on the ward and am sat in the lobby of the hospital. It’s pretty warm here but not overly so. I can also smell all the food from the M&S cafe and Costa that this hospital has (it’s like a mini shopping centre). It’s a shame I can’t eat any of it but I’m sure I will be soon.
Today has been a much better day despite the rocky start this morning (I struggled to sleep again last night because of the NG tube). I’ve been on the TPN since yesterday evening and it’s given me a big energy boost so I was able to shower and go for a nice walk to outside the hospital, but still on the grounds, with my aunt.
The NG is bringing up very little now so I’m hoping it’ll come out Friday. Also, my stoma is still producing green bile but nowhere near as much and it’s more mucusy which I think is definitely a step in the right direction.
I’m going to try and stay as positive as I can so I can continue to recover. I don’t think I’ll be home before Wednesday next week but I’m content with that for now.
I’ve got a PICC line in now. They haven’t started the TPN yet but I think they are going to soon. I’ve still got my cannula in but that’s only so I’m getting some fluids while I wait. The NG tube is still here. I was hoping they might take it out but when they asperated it last, there was still a bit if green bile coming out. My stoma is still producing green liquid too. The doctor is hoping that by having a few days on TPN, my system might have woken up. We just need stuff to stop coming out of the NG and out of my stoma. Fingers and toes crossed this will all be over by next week.
They did a CT scan this afternoon and, although there are no twists in my bowel like they suspected, it does appear my small intestine has gone to sleep. They put in an NG tube last night so I’m no longer throwing up nor do I get major stomach cramps anymore, but it is irritating my throat a bit. Still the lesser of two evils.
As for cannulas, I’ve been through three in twenty-four hours so it would seem my veins are starting to give up.
I’ve been nil by mouth for the best part of a week so they want to put in a PIC line (sorry if that’s the wrong spelling) tomorrow morning so I can have some nutrition.
To be honest, I don’t want anymore tubes in me. I’m hurting and uncomfortable from everything they’ve had to do already and I’m not looking forward to having anything else. But I know it for the best; if I want to go home, it’s through a path of tubes.
Sorry for the lack of update yesterday, I was in a lot pain all day, and last night they put in another NG tube. I’m nil by mouth and can only sip water. My throat is sore from the tube, my stomach is still cramping and now my cannula had blown so I can’t have anything to help with either the heat or the pain until they replace it. My stoma is working but it’s alot of green liquid coming out which the nurse said is the same as what I was throwing up over the weekend. They don’t know what is causing my pain and they want to do either another xray or a CT scan to see if my bowel is twisted.
I’m feeling pretty miserable at the moment. All I want to do is sleep but I’m in too much pain and too warm to get comfortable enough. I hope everyone has had a better weekend.
Sorry for posting so late, it’s been another interesting day. I was able to sleep a bit better last night because of the paracetamol and morphine they’d given me and I woke up with very little pain. I had a couple mouthfuls of cereal but couldn’t eat anymore. I then started having a mild cramp in my stomach which got slowly worse as the morning went on so I requested only jelly and ice cream for lunch. I managed the jelly but a few hours later, I threw up a load of green bile (green, we’ve deduced because of the bright green colour of the apple fortijuce I had drank the day before).
This prompted the doctor to try a second NG tube but the nurse accidentally hit a blood vessel and I had a big nosebleed so they’ve opted not to put one in for now. The doctors also don’t think a tube will help as what I’m bringing up is mostly bile and my stoma has started working, albeit slowly. It seems I’m being sick over the pain in my stomach so they are giving me IV paracetamol every six hours and a morphine injection as a top up.
I threw up again this evening, which seemed to oddly help with the pain. And I’ve been going for walks up and down the corridor to try and shift the wind that’s still trapped in my bowel.
I don’t think I’ll be going home any time soon but at least I’m in the best place for me right now. I just wish I could be better so I could go home and sleep in my own bed.
I didn’t sleep again last night due to stomach cramps and some really noisy drunks having a shouting match right out front of the hospital! I’ve had paracetamol and oralmorph to deal with the cramps and I’ve been sleeping for most of the day. Right now, the pain has been bearable and I’ve been able to have (and keep down) cheese and crackers for lunch. I’m still eating with caution because I don’t want to agitate my stomach by eating too much and end up back at square one again. They are still looking at tomorrow as a discharge date but we’ll see. Fingers still tightly crossed!
I’m feeling a lot better today compared to the kat couple of days. I was able to sleep again last night and I’ve had very little pain. I’ve had soup and jelly today for lunch and so far so good. I’m going to try something a bit more solid tonight in the form of mashed potato but I don’t want anything much more today just in case. I’ll try some cereal in the morning, though, I think.
What Can I Eat 