So, I’m only taking 10mg of prednisolone now and I go down to 5mg next week before stopping entirely. I’m both happy and nervous about this; happy because yay, no more pred-face or weird hunger, but nervous because last time I came off them I ended up in hospital for a week. I know the mercaptopurine and the infliximab infusions are meant to essentially “take over” from the steroids once I come off them, but I can’t help but feel like they won’t be enough. I don’t want to go back on the prednisolone if I can help it but I don’t want to end up flaring again. I’m already getting a pain in my left side and when I need the bathroom, it’s kind of urgent. Also, my gut’s been quite sensitive to a lot of foods recently so I don’t really know what to do.
Published by severinedarkora
WhatCanIEat blog. My experience living with Ulcerative Colitis, a stoma and a j-pouch. IBD (UC) warrior since 2016, end ileostomy formed April 2017, j-pouch & loop-ileostomy formed June 2018, stoma closed March 2019, loop ileostomy re-opened August 2019 due to pouch failure. View all posts by severinedarkora