So, as we all know, there is a pandemic at the moment. As someone with a chronic illness (and as someone whose partner has active asthma), I am concerned. I don’t want to catch coronavirus and I certainly don’t want my partner catching it. If we did, it would be extremely serious for us both.
I work for the NHS and so am classified as a key worker (as is my partner). Where he can work from home, I can not. I am currently at home due to an IBD flare-up (which I’ll get into in a bit), but I will eventually need to go back to work. The thing is, even though my work’s Occupational Health has advised I stay away from patient interaction, my job is patient-facing, so I’m not sure what I’ll be able to do when I do go back. And on top of that, what if I pick up coronavirus on my way home or from an asymptomatic colleague? There’s not a lot I can do other than opt to self-isolate. This will have to be something I discuss with my manager when I return to work.
As for the flare-up, it started about three weeks ago. We had just got back from the Netherlands and I was starting to experience stomach cramps. I put this down to having tensed during the flights as I dislike flying, namely take-off and turbulence. I thought they’d go away after a bit but no, they kept getting worse. Two weeks ago, it got to a point where I was having to sit down because I would get nauseous if I was stood for too long. That’s when the fatigue began to set in, to a point that my colleagues where starting to notice. They would tell me that I didn’t look well and that I should go home. I didn’t want to. The fact is, I haven’t been at this job for a year yet and my probation period had already been extended due to two instances of sickness (both of which I was hospitalised). If I called in sick, that would be three instances within the first nine months of my employment and I didn’t want to risk losing my job (despite all the reassurances from my colleagues to the contrary).
Come Friday of that week, and I am feeling awful. Thankfully, Friday afternoons are quiet for me at work so I didn’t have to do a lot. I decided I would use the weekend to rest and evaluate my condition Monday morning. I think they saw it coming as my manager was not surprised when I called in. I was signed off for two weeks. That two weeks is almost up and, unfortunately, I am not feeling much better. If anything, the pain is worse. I’ll be speaking to my GP again Monday to extend my sick note. It sucks but I have been advised by my GI to stay at home if I am experiencing flare symptoms. Hopefully, things will settle down soon and I’ll feel well enough to return to work.
Anyway, to everyone who reads this, whether you have a chronic illness or not, stay safe.
I’ve called the helpline. I know they won’t really be able to do a lot because I have my appointment with my GI next Monday, but I just feel like I need to talk to a nurse; the last few days haven’t been good.
I have to have a blood test at the hospital too so I’m going to be busy this morning. I’m not planning on doing a lot this afternoon though; I’m not sleeping enough so I might try and have a nap after lunch.
I’ve had an xray on my stomach which hasn’t shown anything bad. They want to see if I react positively to the steroids over the next couple of days but if not, they’re going to do yet another flexi and possibly change my infusion drug. The doctor said it could be due to hypersensitivity within my gut after being inflamed for a while.
Also, my cannula is hurting when they give me my steroids through it so they’re going to change it in a little while.
Thank you to @natsufatsu and @sabinasanfanfic for your kind messages.
They’ve done blood tests, samples and have mentioned doing an admoninal xray to determine if it’s a UC flare or an infection. They’ve already started the intravenous steroids so hopefully they’ll work and I won’t need antibiotics.
Feeling like death warmed up. I’ve been feeling worse and worse over the last four days so I’ve called the helpline in hopes of getting some answers tomorrow. I’ve barely eaten anything today and I spent most of it sleeping.
Things don’t seem to be getting any better; I’m still cramping after every bit of food I eat and bathroom visits are painful and unpleasant… I think I’m going to have to call my helpline on Sunday and see if there is anything else they can do.
I hope everyone’s had a good New Year so far. I’m unfortunately still flaring and I don’t know if the increased mercaptapurine and additional colesevelam are actually working anymore. It’s quite painful after eating and my dinner didn’t stay down last night so I’m feeling a bit unsure. I’ll probably give it another week and then call the helpline if things don’t improve. I also need to book my next infusion; for some reason I wasn’t given an appointment for my next one. I’m starting to feel as though I need them more often.
Been a little self destructive today; I’ve eaten things I knew would be a bad idea and am now paying for it. I wish I had better self control. Still, I’ve a week off work now so I’m going to try to stick to my flare foods as much as possible. Wish me luck!
I called the doctor yesterday to see if my results were back but, unfortunately, the test they requested is no longer a routine one so they haven’t even tested it yet! As for my blood test to see if it’s much vitamin D levels that are making my hair fall out, I have to phone the hospital for that because they haven’t sent them to my doctor yet. It’s been over a week.
I’m getting pretty fed up with this flare now; it’s not bad enough for them to do anything but every time I eat, it hurts so I’m trying not to eat much. Even vegetable soup which is usually fine for me is causing issues. I’m not really sure what to do. I can’t tell if I’m getting worse or if I’m just getting used to it.