E is for Energy

Like most chronically ill people, I know of, and use to some extent, the Spoon Theory to explain my fatigue. If you don’t know, Spoon Theory is the idea that when you are chronically ill or have chronic fatigue, you only have so much energy, or Spoons, to do tasks. Each task taking up a different number of spoons. For example, say you wake up and you have five spoons to spend that day. Having a shower and getting dressed may take up one or it may take up two, depending on your condition. Let’s say it takes up two. You now have three left to use at work, come home and make dinner. But if works takes up three (or in most cases more) spoons, you won’t have any left to make dinner. So, do you have the shower or not?

This is one of the many issues chronically ill people, or “Spoonies” have to deal on a day by day basis. 

Some days, I’m ok; I have enough spoons for work, a shower and dinner. But some days, like today, I barely have enough to get dressed. I needed to shower and wash my hair. This is something I really don’t like putting off because it makes me feel worse if I do. So of course I forced myself to shower this morning. Even as I sit here and write this though, I am feeling drained, and worried I’m going to struggle at work. (and its not even 7am yet). 

This is my reality. This is why I sometimes cancel plans last minute. This is why, some days, I can do nothing more than get dressed and sit on my computer all day playing games. 

And it’s not just me; a lot of Spoonies face the same difficulties. We all get bad days but when your a Spoonie, your bad days can be so much worse. 

Please remember to be kind. If someone says they are fatigued, they probably mean it. There is a big difference between being tired and being fatigued.

 … 

Please note: you don’t have to be chronically ill to have Spoon Theory apply to you. It is entirely ok to relate to Spoonies even if you are otherwise healthy. 

Also note, there are a lot of variations on Spoon Theory, such as the Match Box and Old Phone Battery.  Thanks for reading. 

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