whatcanieat:

Finished my six day working week! I’ve had a bit of a boring day but it went somewhat quickly. I’m now about to dig into homemade gluten-free macaroni cheese made with just gluten-free pasta, cheese and milk.

My stomach has been ok today but then I haven’t really eaten that much aside from a gingerbread man and the last of my gluten-free brownies.

whatcanieat:

I keep seeing post about how other spoonies have people who were once friends but left them when they found out they were sick. I am so grateful my (admittedly small) circle of friends have stuck by me so far, even though I’ve had to cancel plans because of my UC. I feel so guilty when I’m not able to do something because I feel sick (and cancel literally the last minute) but they are always so supportive and understanding; they never ask questions, they just accept and stand by me. I am so lucky.

Five of six

whatcanieat:

The plot of Toy Story is apparently facinating at four in the morning. Or at least, my brain thinks so. I woke up for no apparent reason, went to the bathroom, and then spent the next hour and a half trying to stop thinking so I could go back to sleep. I’m so tired. I will need lots of caramel tea today.

My stomach is still hurting too but not any more than usual so the pizza last night was neither a good nor bad idea. It seems that whatever I eat, it’s going to hurt. If it continues into next week I’ll call my doctor and see what she can recommend.

Lunchtime update

whatcanieat:

The caramel tea I had this morning seems to have done the trick; I’m still tired but not as bad as I was. My stomach is still hurting but the bloat has gone down quite a bit (which could be to do with my not eating as much). My recommended daily calorie intake is asbout 1800 but this week I’ve only managed 1600. I don’t normally count calories, but I do keep track of it on my phone so I know roughly how I’m doing. I need to try and eat a little more so I don’t end up losing weight. I’ve tried a Slim fast shake as part of my lunch today to try and get some extra nutrients in me. I prefer Fortisip but they’re a bit more expensive and I don’t want to become reliant on them.

I’m also trying to drink more again; Plant Nanny recommends 2 litres of water per day for me which I’m just about managing.

At least the day is going relatively fast. I just hope it continues that way.

It’s Friday

whatcanieat:

Which means only two more days after today. I’m still a bit tired from yesterday but I’m going to get a caramel tea on my way into work this morning so that should keep me going until lunchtime. My stomach is still a bit soar so food is going to be minimal today; I’m still not sure if it’s specific foods that are making it hurt or if it’s just food in general. I guess I’ll have to keep to plain foods for now and see if it improves.
I’m still on the prednisolone (taking six 5mg tablets daily at the moment) so that’s probably what’s keeping my other symptoms at bay. I just hope that the mercaptopurine is working too so when I finish the steroids, I don’t end up flaring and back in hospital.

Hey guys

whatcanieat:

jessthecrohnie:

Long time no see…

I want to put together a super detailed and (hopefully) helpful post about going to college (or school in general) with chronic illness. Send me your tips, or reblog and share them with me, pretty please?

I’m no longer in uni/college so I have no tips for going with a chronic illness, but I’m reblogging to spread the word.

Not a bad day but could have been better

whatcanieat:

I’ve been a bit more tired today so I’m thinking I’ve hit that point where, if I’m not careful, I’ll crash before the end of the week. I had two cups of caramel tea today because I needed the boost in the afternoon, and it was kind of tempting to get one on the way home too. I resisted because I just wanted to go home and have something to eat.

Also, my stomach has started hurting again and I’ve noticed it’s happening more, and usually shortly after eating. I’m not sure if I should be worried. It’s not a crippling pain but it’s enough to distract me from whatever I’m doing. Thankfully, work wasn’t very busy today so it was manageable, but if it get’s busy over the weekend, I might have some problems. I may have to play it safe and go back to plain food again for a while, and if it’s continues, call my doctor. The only thing is, it’s the only symptom; the rest of my gut is fine right now so I don’t know if I’d be over-reacting by calling them… I’ll see what the next week is like and then decide. Hopefully, it settles and I won’t have to worry. I have just under three weeks until I visit my sister up north and I refuse to be sick during it.