They’ve over-done it a bit though as I know have enough mercaptopurine and mesalasine to last me several months! I’ve got nine weeks of prednisolone (the extra week of 40mg daily was mostly given whilst in hospital, so only eight weeks left). I’m taking Adcal-D3, co-trimoxazole and colicalciferal for the duration of the steroid course, and the next humira doses are in just over a week. Then it’s once every two weeks.
They also gave me some fortisip drinks, like last time, to help get my nutrition intake whilst I recover.
I’m exhausted from going through everything but I’ll admit I’d be totally lost if I didn’t have Medisafe on my phone. For those who don’t know, it’s an app that allows you to list all your medications, when and how many you have to take, and it’ll remind you to take them at the right times. You can “take”, “skip”, or “reschedule” meds which is so much easier than setting alarms all over the place. It can be a tad glitch-y but it’s been mostly fine for me. I’m sure there are other medication apps out there but this is the one I found works for me. Does anyone else you an app like this to keep track of their meds?
Flexi all done (at last). The prep was just a standard enema but it was so painful! I had to have a nurse assist me. Then I was in a lot of pain for about an hour where I wanted to go to the bathroom but there wasn’t anything to pass so I just had to wait for the sensation to go. The flexi itself was also quite painful but the sedative took the edge off, at least. The nurse even offered me his hand to squeeze.
I’m feeling pretty bloated from the gas they pumped into me so I’m still hurting but nowhere near as badly as I was before.
The plan now is to rest before lunch, eat as much lunch as I can (only ordered a small omlette and jelly for after), then to rest for the afternoon before my parents come to visit me.
Sorry if anyone found this a bit of an overshare but I feel sometimes you can’t always hide the “gross” side of having IBD.
I hope you are all having a relaxed and spoon-filled day.
[drawing of a green elephant saying “It’s okay if today is not a good day for you. It will be over soon and you’ll have plenty of good days again.” in a green speech bubble.]
In a new ward, with new ward-mates (most of whom were moved in during the early hours of this morning, like me) and a team of lovely nurses. I’m not sure if I’ll see a doctor today (doubtful as he only came round to me yesterday) but at least I’ll have time to dose and catch up on some sleep if they just leave me alone today. I was going to try and move around a bit more this time because staying in a bed for days on end makes my legs very stiff when I get out but that might have to wait until tomorrow; I’m badly lacking in spoons today.
You’ve had to listen to someone talk about how they don’t take meds because they’re “all natural” and had to both keep a straight face and not slap someone
Even worse, last night I asked a co-worker how her friend that has colitis is doing, and if she is on meds and feeling better…..she kinda looked up and said “Ummm she’s anti-medication, but I’m not sure what she’s doing, she’s definitely feeling better though she wants to go out and drink!”
Jeez….oh to be young and stupid and then nearly die because you believed that “positive thinking” actually works for actual medical issues
I’ve been told more than once to “think positively” and I’ll feel better. It’s very hard not to slap people when they say stuff like that.
What Can I Eat 