April is IBS Awareness Month. If you have irritable bowel syndrome (IBS), you are not alone – IBS is common with prevalence estimated at 10% to 15%. Yet many people remain undiagnosed and unaware that their symptoms indicate a medically recognized disorder.
no matter what you are going through right now, you are strong enough to endure it; there might be a struggle, you might feel alone or like everything isn’t real around you, but please, please do not give up – say it with me ‘i will not give up’: that’s your gentle reminder for yourself, hold onto it, and try your best to never forget it
“I will not give up. I will not give up. I will not give up!”
I’ve just spoken to the doctor again today; my xray came back ok – no toxic megacolon. Also, the surgical team are still going to come talk to me but it won’t be for a day or two, I imagine.
The steroids seem to be working as well (much better than last time) so my inflammatory markers are lower and my appetite is coming back so I’m hopefully putting on a bit more weight. I’m also hoping that this means to c. diff infection is on its way out as my BM have slowed a little since starting the steroids.
I managed a shower but now I’m very low on spoons again. They bought dinner round early so I’ve had most of that. Now, I think I’ll try and sleep for a bit; my left side is hurting again and I feel like I’ve got a football in my stomach so I’m hoping a nap will help things move along so I’m a bit more comfortable tonight.
I’ve done nothing all day but lay in bed, go to the bathroom and take meds. I have slept some more so I don’t feel as bad as I did last night but now I’m trying to convince myself to go have a shower. Problem is I’m comfy in my nest of duvet, blankets and pillows and don’t want to leave.
Despite me wearing my thickest jumper, putting the heating on and hugging my hot water bottle, I haven’t been able to get warm all evening. I’ve had more BM than “normal” this evening too and my stomach/gut is soar from all that so I’m in more pain than normal. I really don’t know what to do, I’m already not going to work tomorrow and it’s look pretty likely that I’ll be back in the hospital before the end of the week. I just hope they find out what’s really going on and fix it.
Sorry for all the negativity but I’m really struggling to stay positive through all this.
I’m a little annoyed with myself today because yesterday I was feeling a lot better compared to Wednesday (in that I didn’t look like death and could actually go more than an hour with having to use the bathroom) but this morning I felt like I’d been hit by a truck; I didn’t sleep as well as the night before and my BM were looking like they’d be every hour again. Thankfully, things seem to have settled now but my stomach muscles are really soar so I’m back to taking paracetamol and codeine, at least for today.
I’m hoping the antibiotics I’m taking for the infection will kick in soon so my weekend of working goes as painlessly as possible. I’ve got Monday and Tuesday off, though, so I can catch up on my sleep. To be honest, I think that’s what I’m really needing; sleep. So, my plan for when I get back from my appointment on Monday is to build a spoonie-nest of blankets and pillows on my sofa and just dose the afternoon away.
March is Autoimmune Disease Awareness Month – show your support and raise awareness by sharing your story or the story of a loved one that is battling autoimmune disease.
Send a picture (or several!) and your story to SpoonieStrong@gmail.com and I’ll feature it on the Facebook & Tumblr pages. Let’s make autoimmune disease visible!
*love & spoons* 💙
You have to pause halfway through your shower to poop even though you went right before getting into the shower.
Feeling so very tired after the last three days at work but I’m also feeling positive that things are returning to some variation of normal. My symptoms are still present and, although they haven’t improved much since I left the hospital, they haven’t gotten any worse. I feel things are manageable at the moment but I’m keeping a very close eye on what my body is doing and how it’s reaction to food as well as my medications.
I’ve got one more day at work before I get a day off but if it’s anything like today was, I’ll be ok. I’m planning on sleeping most of Sunday so I’m ready for next week.
What Can I Eat 