Tag: recovery

Day 4

I’ve seen my doctor today and I am now drain, cathatar and PCA free! I still have a cannula but they said they’ll remove that as well later.

I am a lot more mobile now that I’m not attached to a load of machines so I feel a lot better than I did yesterday. It still takes a lot of energy to get to the bathroom – which is just across the corridor from my bay – but I am recovering faster from each excursion.

I’m still on a liquid diet, probably until tomorrow, but I’m at least allowed clouded liquids instead of just clear.

Maybe I’ll get to go home soon.

Day 3

My pain was a bit worse last night so my sleep was quite broken, but it seems to be under control at the moment. I’m still on a liquid diet but I am managing more than yesterday – and I haven’t thrown up today, which is always good.

I haven’t needed as many catnaps today either but I am still very tired. I’m going to try and walk again later as the more I move, the faster I’ll heal and I can go home quicker.

To be honest, I just want the cathatar out. It’s not the most comfortable thing to have in.

Day 2

I had a bit more sleep last night so I haven’t been nodding off quite as much today. That’s not to say I’m not still super tired, but it’s better than yesterday.

My blood pressure is still low which is due to my not drinking enough, but I’ve upped my water-intake today and even managed an apple juice as well as a few mouthfuls of jelly.

I went for a little walk with my nurse just now and to say I am worn out would be an understatement. I wasn’t sick this time though so I’m taking that as a very good sign.

I don’t have much of an appetite but I might try some soup later if I’m feeling up for it.

Wishing everyone a good and safe Friday evening.

Thank you so much, @jerrybtv, for your very kind words. I am sorry you’ve had to go through that. You’re right though, being alive is the best alternative. The biggest thing to remember is that recovery is not linear; it’s a lot of two steps forward, one step back, but so long as you don’t give up, it is possible. I hope you are feeling better soon.

Day 1 update

Today has been interesting, I didn’t really sleep that well last night so I’ve been having little catnaps throughout the day. My pain was fine this morning but it got worse after I got out of bed, and I was sick on my way back from the bathroom. I’ve been using my PCA a lot more now but the nurse said it’s normal given it’s so early after surgery. My brainfog has returned but I think that’s due to being so tired.

On the positive side, I’m not nil-by-mouth! I’m not allowed solid foods yet but I’m on free liquids which includes jelly and ice cream. Also, I’m able to move. I’m very slow but I can get to my feet with help and move around a bit when sat or laid down on my own.

Not going to lie, today has been hard and all I’ve wanted to do is curl up into a ball and sleep. However, the nurses have been great so I can’t complain.

It’s very late where I am right now and, as is quite normal for me in hospitals, I can’t sleep. So, I thought I’d update you all.

Well, surgery went well. I’m on a fentalyn PCA and intravenous paracetamol, have a drain in my side (which doesn’t appear to be draining anything anymore) have a cathatar in, and an oxygen nose tube. The lovely thigh-high stockings they made me wear through surgery were too itchy so I’m now wearing knees-highs instead.

My pain is farely mild, considering, and I felt a lot better when I woke up this time vs last year when I had my colon removed. I had brain fog so I was slurring my words for several hours after I woke up this evening, and I kept having micronaps mid-conversation because of the anaesthetic. I’m annoyingly quite awake now but I will try and sleep as best I can.

Thank you to everyone for supporting me and helping me through this, especially @sillyriceball & @thatchronicfeeling

Surgery school done!

So, I survived surgery school. For those of you who don’t know, it’s an optional, pre-surgery casual group meeting with several nurses and hospital staff who go through what to expect after surgery and how best to prepare for surgery. I knew most if what they had to say but it was nice to go anyway because they gave out leaflets on ways to be more active along with some (not 100% relevant) dietary advice. I spoke to the nurse during the break and she said she’ll get the dietitian to give me a call later this week. Overall, this morning has been pretty good. Now, it’s off to work for the afternoon.

I went to the gym last night for the first time in two weeks! I only spent about half an hour there though because it’s so warm at the moment and I was worried my bag might come unstuck mid-workout. It was a good session but I’m so tired from it; it’s surprising what two weeks off can do to your fitness. Anyway, I plan to keep going every week up until my surgery then I’ll be taking a couple of months off. I’m considering going just to walk on the treadmill once I feel up to it but I don’t intend to do anything more than that between surgeries. I’m hoping this will help my recovery whilst keeping myself somewhat active without over doing it.

1 year Stomaversary!

So, today marks 1 year since getting my stoma. It’s had it’s ups and downs, but overall it’s been the best year I’ve had for a long time.

The biggest thing I’ve had to get used to is eating like a normal person again; although I am currently keeping to a (mostly) gluten-free and reduced dairy diet, I’m still learning what foods are good and what ones are still bad. Most of the bad ones consist of foods I couldn’t eat before (such as certain fruits and vegetables) but there are some new ones (like nuts and popcorn). Still, it beats living on instant noodles, plain crisps and gluten-free cereal.

Getting back to a normal sleep pattern hasn’t been hard at all; it seems I wasn’t sleeping anywhere near enough before so I’m able to sleep fine now. Other things like doing housework and being able to go out for the day are still a little bit difficult due to a lack of energy, but I have less concern about bathroom location now whenever I leave my flat.

Another thing I’ve had some trouble with is exercise; I was warned not to over stretch or lift anything heavier than a kettle for the first 6 weeks. Because I was practically bound to my room at the hospital for three weeks, my leg muscles had deteriorated quite a bit so I had to work up to walking longer distances slowly. This also meant I couldn’t exercise much at all. After a few months, my legs were almost back to their original size and strength and my stoma nurse said I was ready to start some gentle stomach exercises. She gave me a booklet that outlined ways to strengthen my abdominal muscles in order to avoid hernias. I had a bit of a false start due to some liver problems, but I started going to the gym not too long ago and it feels good to be able to get back into a routine again.

As for what to expect in the future, I’m seeing my surgeon tomorrow morning and, seeing as the issue with my liver isn’t what they thought it was, it looks like reversal is a strong possibility. I hope to get that ball rolling and have a date for the next surgery soon. For now, I’m happy to keep baggie for as long as I need to.