Tag: ostomate

Emergency ostomy kit

So. a while back I said I’d do a post about my emergency kit and what I kept in it, for when I go out. So here it is!

Let’s start with the bag; it’s just a simple, one-compartment, zip-up make-up bag. Nothing big or fancy. It fits into my handbag and, because it’s a make-up bag, it’s discreet.

Next, the contents. So, I always take two ostomy bags (currently uncut because my stoma hasn’t settle on a size yet), two disposal bags, a pair of scissors (I’ve got proper curved ostomy ones but for the kit, I use curved nail scissors because it’s easier than swapping my scissors out every time I want to go anywhere), a measuring template (Charter sent me a small fold-up one with their welcome kit), a small pot for holding water (mine came with some make-up pads in it but you should be able to get empty ones), a travel pack of wet wipes, a handful of dry wipes, adhesive removal spray and a compact mirror. I also keep a little elasticated clip (again, from the Charter welcome kit) which you attach one end to the collar of your shirt/t-shirt/dress and the other to the hem in order to keep it out the way while you sort yourself out. If you don’t have one, ladies, tucking your top/dress/ect up under your bra is just as effective. Otherwise, maybe ask your stoma nurse or whoever you get your supplies from if you they can give you one.

I don’t keep a spare pair of pants in my kit, purely because they don’t fit, but if you can fit a pair in there, do so; there’s nothing worse than having cleaned and changed your bag after an accident but still being stuck in soiled pants.

And that’s it. I hope this was helpful to at least one person.

Third check-up

I had my third stoma check-up this morning. The nurse is really happy with how my stoma is looking at the moment; she said the separation her colleague noticed last time is normal and seems to be healing ok so she’s not worried. Next appointment is in three months unless I have any problems.

Also, I only have another week and a bit of steroids then I stop taking them (hopefully for the last time)! I can’t wait because it feels like I’ve been on them forever. They make my stomach and face bloat, both of which have gone down quite a bit now that I’ve tapered to a low dose, and my appetite goes from “meh, food” to “EAT EVERYTHING IN SIGHT!” so it’ll be nice to finally finish them once and for all.

Travelling with an ostomy

So, I recently had my first overnight trip since having a stoma and I thought I’d share a couple of things that I learnt on the way about travelling with an ostomy.

First things first; Packing. I’m always worried when I have to stay overnight somewhere in case I don’t pack enough of something or completely forget to pack the thing altogether, so I tend to make a list of things I’ll need. The list consisted of the usual “underwear, socks, toothbrush” ect. but this time, I had to consider how many times I’d need to change my bag whilst away from home. I change my bag every other day and, thankfully, it worked out that I’d only need to change my bag once while away. However, me being me, I didn’t just pack one bag. No, I packed three; one to change into and the other two were spares. I realise this was a little excessive but the last thing I wanted was for my current bag to leak or get damaged and be unable to do anything about it. So, my advise on this is always bring spares. Even if you’re only staying one night, bring spare bags and cleaning supplies. I’d say for a longer stay, pack twice the amount of supplies you expect to need. That way, if something goes wrong (you’re flights delayed, you missed the last train ect) and you have to stay longer, you know you won’t run out.

Second is emptying your bag before you set out. We travelled by train for this trip and the journey was around three to four hours each way with one change. Knowing that on-board toilets are usually small, cramped and, a lot of the time, unclean, I didn’t really want to have to empty my bag in one. So, I made a point of emptying my bag before we left to go the train station. Obviously, I couldn’t avoid emptying my bag at least once during this trip so I made sure to check we’d have enough time between trains for me to go the toilets at the station. Thankfully, we had about half an hour until our connecting train arrived. If you can, this is probably the best time to empty your bag because then you won’t have to worry about it during the next stretch of your journey.

Something to point out; some UK train station will charge you something like 20p to use the toilets but the disabled ones are accessible with a Radar Key. It is also worth noting that the disabled toilets may not be as clean as you’d expect. I found this out the hard way; someone had had an accident and no one had got around to cleaning it up yet. So, the moral of this story is if you can use a normal cubicle to empty your bag, it’s probably worth the 20p to not risk getting someone elses accident on your shoes. 

Thirdly, take an emergency kit with you wherever you go. I have found I feel a lot more confident when I go out because I know I’ve got my emergency kit with me. It’s not a big kit, consisting of a bag, cleaning supplies and a compact mirror. All of this goes neatly into a make-up bag that, in turn, fits nicely into my handbag. It’s discreet and gives you peace of mind, if nothing else. I’ll be sure to make another post about exactly what I’ve got in mine.

Lastly, travelling abroad. I have yet to travel abroad with my ostomy so I can’t really give advise on this one. However, there are loads of articles and tips available online. If in doubt, ask your Stoma nurse or GP before booking anything. Happy travelling!

Thank you @thatchronicfeeling, this was helpful. I hadn’t thought about the entry queue; it’s usually quite long after advanced ticket entry (which we do have, thankfully). They had a seating area near the food stales last year so I’m hoping they’ll do something similar this year. I’ll keep an eye out for a map, sometimes they release it early so you get an idea of what there’ll be in the sellers halls. There are plenty of toilets as well and they have pretty big signs above them so I shouldn’t have any trouble finding one.

I highly recommend going to comic con if you can. The London one is huge; it takes up almost all of the London ExCel centre (which is a massive building), and is over three days now. I got my Totoro keyring from there a few years ago.

I went to the doctors for an ECG this afternoon because my resting heart rate has been abnormally high (between 100-130 bpm) since leaving the hospital. The nurse said although it’s steady, it is high so she showed my doctor and said it could be that my potassium levels have dropped again so I’m going to have a blood test tomorrow morning. I may have to start eating more bananas.

I’ve been less stiff today; I slept for a bit on the sofa last night with a hot water bottle on my stomach next to my bag and the pressure-heat combo seemed to relax my muscles. Also, my ankles aren’t as swollen today.

I’m still a little tender around the middle but I think that’s a combination of having done too much over the weekend and having a bit of trapped wind. I feel more comfortable than yesterday though so if I continue to take it easy over the next couple of days, things should improve.

Feeling a little fragile this evening. My stomach and gut feel heavy and tight but not painful. I’m also bloated from the steroids and my ankles have swollen again. I think I may have over done last weekend.

I’m getting tired but I don’t really want to go to bed felling like this. I think I’ll put a film on and lay on the sofa with my feet elevated. That’s helped before and, if I lay on my back but prop myself up a bit, it might help my stomach relax.