Things don’t seem to be getting any better; I’m still cramping after every bit of food I eat and bathroom visits are painful and unpleasant… I think I’m going to have to call my helpline on Sunday and see if there is anything else they can do.

Inflammatory bowel disease should never be misconstrued for someone having an eating disorder. We eat what our bodies can handle and we eat as much as we can. Never be quick to be overcritical of our eating habits because to you they may be unusual, but to us, they are our safe foods. We do not need a lecture on how to eat healthy or what we should be eating instead, but rather we don’t your input unless we ask for it. If one were to read up on inflammatory bowel disease, you would see we have to worry about several trigger foods. These foods oftentimes bring on our symptoms and are difficult for us to digest. There is a difference between telling us what to eat and asking us what we can eat. Learn about the inflammatory bowel disease first before you decide to sit there and dictate what foods we should be eating to work towards living a healthier lifestyle. We cannot eat whatever we want and we, as the patients, are very aware of the kinds of foods that our bodies can no longer tolerate.

Wade Sutherland (via fellowibders)

This is something I wish I could share with certain people. It’s hard not to come across as defensive or ungrateful when telling someone that you know better than them what your body can handle.

Doctors appointment went fine. He was just checking up on me and making sure I was ok with my meds and so on. I said that I couldn’t feel any real change yet but it’s only been two weeks so I’ll give it until the end of the month and if nothing has improved by then, I’ll call the helpline again.

I’ve got a doctors appointment tomorrow morning but I don’t know what for; the surgery called me and asked me to make one but not with my normal GP. I’m assuming it’s just a general checkup because of what’s been going on with me over the last few months. Hopefully nothing serious but I’ll update either way.

I’ve been self-destructive again this week. I tried to have me-friendly food but I have eaten a lot of things that I shouldn’t have. I had a korma last night (which stayed down) but it inevitably hurt last night and this morning. I’m going food shopping tomorrow so I’ll be able to get more of what I can eat. I’m going to try and have sandwiches for my lunches at work again provided I can find a gluten free bread I like.

Happy belated New Year, everyone!

I hope everyone’s had a good New Year so far. I’m unfortunately still flaring and I don’t know if the increased mercaptapurine and additional colesevelam are actually working anymore. It’s quite painful after eating and my dinner didn’t stay down last night so I’m feeling a bit unsure. I’ll probably give it another week and then call the helpline if things don’t improve. I also need to book my next infusion; for some reason I wasn’t given an appointment for my next one. I’m starting to feel as though I need them more often.

Last update of 2016

TGIFriday’s went well on Thursday. I had a nice gluten free burger and I got a free mocktail. Friday was good too so was today, although I did have a bit of a stomach cramp this afternoon. I am spending New Year with my fiance, sister and her fiance watching Dara O’Briain, eating pizza and drinking iced tea. I hope everyone has a good, safe New Year.

Good week so far

So work wasn’t too bad this week so far; I found that applying heat to my cramping stomach helps it relax and, therefore, stop hurting. My manager, who gets cold very easily, uses adhesive heat pads on her stomach so she gave me one which meant I felt perfectly fine all day yesterday. I’m getting myself some heat pads as they will be great for the winter as well as my stomach cramps.
My upped dose of mercaptapurine seems to be working somewhat, and the colesevelam seems to be doing its job as well. I’m not entirely out of the woods but I do feel a little better in myself. Oh, and I finally got my cholecalciferol which I started yesterday so fingers crossed my hair will stop falling out and I won’t feel as tired anymore.
I’m off work today so I’m spending it with my sister and her fiance and we’re going to go bowling this afternoon. This evening we’re going out for a meal because it’s my mums birthday today. She’s unfortunately working all day but I’ll see her at the meal to give her her present. We’re going to TGIFridays; they’ve got a good gluten free menu and decent portions too. Here’s hoping it all goes well.

I hope everyone had a good holiday. I was in quite a bit of pain – and still am – but the hot water bottle I got from my aunt has been put to good use over the pass two days. It seems to help at least a little with my cramps, and it does feel as though the colesevelam is working too. It’s either that or the upped does of mercaptapurine. Something seems to be working at least as I didn’t need the bathroom once last night.
I just hope I can sleep well again tonight so work isn’t too painful tomorrow.

Merry Christmas

I’ve been pretty self-destructive today by eating things I shouldn’t have. I’m hurting quite a bit right now so I guess I’m paying for it. Pain killers are next on my list.

I won’t be online for a couple of days but I hope everyone has a spoon-filled Christmas/Winter holiday.