Tag: ibd

You might be a spoonie if….

thecomposerandherchorus:

cripples-r-us-swag:

spoonie-isms:

You’ve had to listen to someone talk about how they don’t take meds because they’re “all natural” and had to both keep a straight face and not slap someone

Even worse, last night I asked a co-worker how her friend that has colitis is doing, and if she is on meds and feeling better…..she kinda looked up and said “Ummm she’s anti-medication, but I’m not sure what she’s doing, she’s definitely feeling better though she wants to go out and drink!”

Jeez….oh to be young and stupid and then nearly die because you believed that “positive thinking” actually works for actual medical issues :/

I’ve been told more than once to “think positively” and I’ll feel better. It’s very hard not to slap people when they say stuff like that.

Just an update

I’ve had an xray on my stomach which hasn’t shown anything bad. They want to see if I react positively to the steroids over the next couple of days but if not, they’re going to do yet another flexi and possibly change my infusion drug. The doctor said it could be due to hypersensitivity within my gut after being inflamed for a while.

Also, my cannula is hurting when they give me my steroids through it so they’re going to change it in a little while.

Thank you to @natsufatsu and @sabinasanfanfic for your kind messages.

Feeling like death warmed up. I’ve been feeling worse and worse over the last four days so I’ve called the helpline in hopes of getting some answers tomorrow. I’ve barely eaten anything today and I spent most of it sleeping.

Thank you @natsufatsu, @mauveina and @aries324 for your advice. I’ve now sorted things and my colleague has backed off entirely and doesn’t comment or even mention my condition. Admittedly, it was my team leader/supervisor who spoke with her for me but it seems to have worked. I’ll keep in mind what you have all said and try not to be afraid for standing up to misinformed/insensitive people. It’s the first time this has happened to me so it was a bit of a weird situation to find myself in. Plus, I hate conflict and don’t deal with it at all well. Thank you all again for your support and encouraging words!

Just an update

The work issue has been solved. I spoke to my team leader and he offered to talk to my colleague for me. He had a chat before she started her shift and apparently, she was very apologetic. I didn’t need her to apologise to me so my TL told her to just draw a line under it and make sure she doesn’t do it again. This has made working with her less daunting so I’m happy.

In other news, I’m being good today. I’ve had gluten-free cereal, grapes, tea and gluten-free savoury rice cake snacks for lunch. My stomach has cramped it’s way through most of this morning but I hope the gentle food stops it from hurting too much this afternoon. I’m not sure what I’ll eat for dinner but I’ll try and stick with the few safe foods I have at the moment. Chicken maybe? Possible with rice or noodles. I haven’t tried steamed vegetables in a while so maybe that with a little grated cheese on top. We’ll see.

Update

So I got a call back from my IBD nurse and she’s said I need to drink more water, try eating more grapes (brcaise they are good for aoftebing stools) and stop taking the colesevelam for a couple of days before starting again on half the dose. She said colesevelam can cause constipation so I need to be mindful of that and call again if things don’t improve with the half dose.

I’m feeling really tired today despite having had about nine hours sleep last night. I’m trying to have a chilled out day today but I realised I need to go out to drop off a prescription request at the doctors and get more grapes.

Need some advise…

I have a new colleague at work who is about seven years younger than me and has been trying to advise me on my Ulcerative Colitis. She’s been saying I need to eat more, have breakfast (because it’s “the most important meal of the day”), have more fruit and veg (despite me telling her it’s bad for me when I’m flaring) and she has even said once that she think it’s “all in my head” and that I need to “think positively” to feel better. I want to tell her in the nicest way to back off but I don’t know how. I don’t want to get my manager involved but I can’t let my colleague keep thinking my UC is an open topic. She’s even said she wishes she could be like me and “not eat” so she could be skinny. It makes me kind of angry and annoyed that she thinks like this. I want to say something to put her straight but I don’t want to make thinks awkward at work. Our store is tiny so it’s not like I can avoid her.

Any ideas of how to approach this are welcome!