Tag: flare

Need to stick to my flare foods!

I had gluten free cereal with milk and a cup of tea for lunch today and I felt ok. This is proof I need to be stricter with myself and refrain from having “bad” foods. Cereal, tea and soup are the way to go, it seems. No more pizza, take aways, fruit or veg (unless it’s in soup or stew).

In other news, I’m off work for a week after tomorrow so it’ll be a good time to get plenty of sleep/rest. I will be going to the gym at least once but I will take it easy; it’s been a couple of weeks since my last work out and I don’t want to exhaust myself. My sister and her fiance are coming to stay with us for a few days on Thursday so I need to make sure I’m not too tired to socialise.

Work training in Britol

Im in Bristol for work training today and tomorrow. It’s an intense day as well as a long one (left for the train at half six this morning) but I’m just about to have dinner at the hotel then I plan on watching some TV before going to bed.

I’ve had a few stomach cramps today and a rush to the toilet when I finally got off the train. Other than that, I’ve not been too bad. I almost fell asleep after lunch though so maybe an early night might be in order. I’ll try and have a decent breakfast tomorrow so I won’t need to worry too much at lunch or dinner. Depending on when we finish tomorrow, I might see if Yo!Sushi is flare friendly.

I called the doctor yesterday to see if my results were back but, unfortunately, the test they requested is no longer a routine one so they haven’t even tested it yet! As for my blood test to see if it’s much vitamin D levels that are making my hair fall out, I have to phone the hospital for that because they haven’t sent them to my doctor yet. It’s been over a week.

I’m getting pretty fed up with this flare now; it’s not bad enough for them to do anything but every time I eat, it hurts so I’m trying not to eat much. Even vegetable soup which is usually fine for me is causing issues. I’m not really sure what to do. I can’t tell if I’m getting worse or if I’m just getting used to it.

Just a flare update

It’s been three weeks since I finished my last course of prednisolone and two and a half weeks since I started showing symptoms again. I’ve been flaring fully for about a week and a half now and it doesn’t look like it’s going away on its own. The problem is, I’m starting to become used to it so my control over my diet is slipping which means I’ve been allowing myself to have things I know I really shouldn’t. It hasn’t made me any worse (yet), but I know it’s not going to help me feel any better. I don’t know if it’s worth me call the helpline again because they might just say what they did last time which was that they can’t do anything else until I get worse.
I feel a bit stuck in IBD limbo at the moment, and unsure of what to do. I suppose the best thing for me is to take control of my diet again and be stricter with myself. Make sure I stick to my safe foods, like soup and tea, and try to rest as much as I can, even if I am working.

So, I’m still flaring and there’s nothing they can do about it. I realise there’s not much they can do besides put me back on steroids, but they’ve made it pretty clear they really don’t want to do that unless they absolutely have to.
I’ve been told to call my IBD nurse again if my symptoms get worse but that’ll likely put me in hospital again. I don’t think I could handle being hospitalised this close to Christmas.

Flexi is over and done with but they didn’t find anything to warrant them doing anything. I’ve been told to go home and relax, and to call the helpline if things get worse.
I’m doing as I’ve been told and I’m trying to eat as normally as possible but I’m still flaring so that won’t be very easy.
I might take a nap later; the sedative hasn’t quite worn off yet and I’m tired and a little light headed from it still.

Two weeks left!

So, I’m only taking 10mg of prednisolone now and I go down to 5mg next week before stopping entirely. I’m both happy and nervous about this; happy because yay, no more pred-face or weird hunger, but nervous because last time I came off them I ended up in hospital for a week. I know the mercaptopurine and the infliximab infusions are meant to essentially “take over” from the steroids once I come off them, but I can’t help but feel like they won’t be enough. I don’t want to go back on the prednisolone if I can help it but I don’t want to end up flaring again. I’m already getting a pain in my left side and when I need the bathroom, it’s kind of urgent. Also, my gut’s been quite sensitive to a lot of foods recently so I don’t really know what to do.