whatcanieat:

Not much change so far aside from being a little warmer than usual. That could just be the weird weather though. Hopefully, get some news in the morning.

whatcanieat:

Infusion has finished already and they said I shouldn’t need another one so it’s looking like home is a definite tomorrow. Just waiting to see how my bowel reacts to the infliximab and then hopefully see the doctor later.

whatcanieat:

I didn’t actually sleep any better last night. I think I sort of crashed because I woke up with a headache which usually happens if I don’t sleep right.
The doctor came round as well and said I’m doing much better. They are going to start the infliximab infusion this morning, get me onto oral steroids and, if everything goes well, they’ll be looking at sending me home either today (fingers and toes crossed) or tomorrow. They said they need to monitor me for at least the first half hour but they’ll know if all is ok within three hours of the infusion finishing.
Because I’m on mesalazine, mercaptopurine, steroids and starting infliximab, they’re also going to put me on antibiotics because all my other drugs suppress my immune system a lot so I’m a lot more susceptible to other infections and diseases. I’m going to be rattling again but if it makes me better, I am not complaining.

whatcanieat:

Nothing else to report but wanted to say goodnight to all my followers. I should be able to sleep better tonight as Wonderful Fiancee brought in my over-the-ear headphones to help drown out any noise tonight. I’ll update again in the morning once the doctors been round. Time for evening meds then I’m off to sleep.

whatcanieat:

The on-call doctor has been. My inflammation markers have gone from 80 on Tuesday to 4 which is apparently very good. Also, all my other blood results are back and all is ok, so infusion is looking very likely tomorrow. On top of that, it’s sunny outside! It was miserable yesterday so it’s nice to see the sun shining. Hopefully get a nice sunset again tonight.

whatcanieat:

crohnsbae:

flyawayrae:

So I’ve started having tingling in my limbs as well as the muscle spasms. Also I feel like I can’t think and I blank out constantly. I forget what things are called and forget what I’m talking about mid sentence. This has all gotten significantly worse in the past two weeks. I trip over my words when I’m speaking and feel like my words are slurred, and sometimes say them in the wrong order. I’m worried and scared. I don’t know what’s happening.

I totally relate to this. I’ve been feeling the same symptoms for the past year and a half or so. It feels like I’ve got this terrible brain fog that hangs over me for weeks at a time and then I’ll feel randomly fine, but I feel like an utter idiot in conversation bc I can’t get anything decent out. Sometimes, it feels like my mind is about 5 seconds behind my thoughts..I told my primary about this and she said it could be Fibromyalgia…Hang in there, bud. 

I get this a lot at work. I’m customer facing and have to give a lot of information verbally to people all day. Sometimes, I’ll be mid-sentence and I’ll suddenly forget what I just said or where I got upto in my explanation of something. I sometimes stumble over my words and I feel really stupid. I’ve tried slowing down but it doesn’t always help. I wonder if it’s related to my UC.