Steamed vegetables with grated cheese. Nice easy, nutritious dinner.
Why does everyone assume that, once I’m back in remission, all I need to do is eat “healthy” to stay that way?
Let me introduce you to an amazing little company called “ A Bear Named Buttony”
These are all teddy bears, and yes, they have ostomies.
They make these teddy bears for kids from 0 to 18 who have had to have surgery to have an ostomy. They do not charge for the bears but ask parents if they could possibly donate, to keep it going. (I have donated and have a bear on the way.. yes i am 5 at heart…)
They are partnered with The Breakaway Foundation, a british weekend camp for kids with bowel and bladder dysfunctions and diversions, which I have attended myself and it was truly amazing.
Here is the fundraiser where you can donate, and Here is the facebook page so you can follow these bears in action.
Please reblog, share, screenshot, etc. I want these bears to be known, so kids with stomas can have a little buddy that can teach them, be there for them, and make them feel less alone.
Just donated. This is such a cute project and I think it’s really important to show kids with chronic illnesses they aren’t alone.
This badge is so important.
Heres to all the things you do even though they scare you to death.
Fearless is feeling the fear and doing it anyway.
Proud of you.
That was exhausting
Made it to the doctors and back in one piece but now I’m exhausted again. Some toast and pain killers should help.
Day #1 out of hospital
I think I slept quite well last night. I kept expecting to be woken up by buzzers or nurses wanting to check my vitals, though. And I’m pretty sure the pressure in the back of my head is the last of my migraine from yesterday morning. I’ve had a digit cramping in my stomach already but that seems to be going now.
The plan today is to relax and do as little as possible. The only excursion out of the flat will be to the doctors and back to collect my sick note for the next week.
My food plan is to have light meals and fortisips so as to not overdo it, with light snacks if I feel hungry. I’m going to avoid fruit for now but only until my steroids kick in and my bowel gets back to some semblance of normal.
I’ll be going for short walks over the next couple of days too; being in bed all day, every day for a week has made my leg muscles stiff and I’m finding walking is a bit painful.
And I’m home
It feels so good to be back under my own roof. I’m still exhausted but I should sleep much better tonight.
I am now back on the prednisolone, adcal d3, mercaptopurine and mesalazine, with the addition of folic acid suppliments and fortisip drinks. I shouldn’t need to remain on the fortisip for too long but I will continue to take them for the remainder of my recovery time. Or until my appetite returns and I’m in full remission again. Hopefully, that should be within the next week or so with my starting the full dose of steroids again.
Good news!
I’m being discharged this evening! I’m looking forward to going home and sleeping in my own bed.
They’re not releasing me any sooner because the doctors don’t want me home alone today. They’re also recommending another week off work to recover.
I’ve got a ton more meds, including another course of prednisolone (ugh). I’m hoping they’ll also give me some fortisip as well to take home so I’ve got that extra bit of nutrition to help ease me back into regular eating.
What Can I Eat 