Hospital-selfie because I’m trying to stay positive and because I can.

Thank you to @natsufatsu, @thatchronicfeeling, and @sillyriceball for all your kind words and helpful advise. I will be talking to my doctor again tomorrow about starting trials for vedolizumab but I may still request to speak to the surgical team just so I have a better understanding of what they can do and what the risks are. That way, I’ll have all the information and I think I’ll start to feel a lot better about my current health situation.

Thank you @natsufatsu. It is a difficult decision to make and it’s good to hear from you and get others opinions on these things. For now, I have decided I’m going to opt for trialling at least the vedolizumab before making any more permanent decisions. I spoke to my sister, @sillyriceball, about it as well and she has been very helpful for bouncing ideas off of too. She agrees I should try at least this one last drug. I don’t want to skip it in case it does work, and even if it only gives me a few months relief, I think it’s worth it. I’ve been a bit depressed about being in hospital again and just want things to go back to some level of normal.

I think I’m going to book some time off work towards the end of this month. I’ve got a busy couple of weeks coming up so I think my body will appreciate the rest. I’m finding I’m having to reteach myself the meaning of self-care and that time spent recovering is not time wasted. Thanks @natsufatsu for the suggestion; it’s not easy for me to get time off but I’m sure my work will understand.

@thatchronicfeeling Thank you. It’s been a tough couple of weeks and I start to wonder if it’s something I’ve done or not done that’s caused it all. I will try to be more gentle with myself; I’m planning on having a self-care evening of bubble bath and warm blanket nests in front of the tv tomorrow after work so I’m hoping that’ll help. Thank you again for your kind words, it really means a lot. Hugs and spoons!

Thank you @natsufatsu, @mauveina and @aries324 for your advice. I’ve now sorted things and my colleague has backed off entirely and doesn’t comment or even mention my condition. Admittedly, it was my team leader/supervisor who spoke with her for me but it seems to have worked. I’ll keep in mind what you have all said and try not to be afraid for standing up to misinformed/insensitive people. It’s the first time this has happened to me so it was a bit of a weird situation to find myself in. Plus, I hate conflict and don’t deal with it at all well. Thank you all again for your support and encouraging words!