So, it turns out I do have an infection which explains why I’ve not been getting any better. I’m being put on antibiotics to treat it so hopefully things will start to improve soon. When I spoke to him yesterday, my GI said the infection was being caused by both the prednisolone and the co-trimoxazole so I’m now having to rapidly tapper the steroids so I can stop them safely, and I’ve already stopped the co-trimoxazole which he also advised to do. I’ll be starting the antibiotics this evening so I’m really hoping they start to work quickly because I’ve got to work all weekend and could use a break from my explosive gut.

General update

Definitely getting worse. I’ve had 10 BM this morning and I was up practically all night. My stomach is cramping so I’m using heat pads again, and even the thought of eating anything more interesting than a plain omlette is making me nauseous. I’ve had two fortisip drinks today instead of breakfast and lunch (I normally only have one with my prednisolone) but I have managed a handful of plain crisps and most of a cup of tea at lunch, so… bonus? I guess we’ll see how that goes this afternoon. I’m at work now for the next four days so I could really do with my gut not keeping me awake all night.

I’ve called the helpline. I know they won’t really be able to do a lot because I have my appointment with my GI next Monday, but I just feel like I need to talk to a nurse; the last few days haven’t been good.
I have to have a blood test at the hospital too so I’m going to be busy this morning. I’m not planning on doing a lot this afternoon though; I’m not sleeping enough so I might try and have a nap after lunch.

I’m having a chilled day today so I decided to see if the rats like to play in water. Neither seemed too interested but I at least got cuddles with them both. I find playing with them very relaxing; they take my kind off of whatever’s bothering me and give me a moment where I don’t feel like the world is falling apart around me.

Feeling so very tired after the last three days at work but I’m also feeling positive that things are returning to some variation of normal. My symptoms are still present and, although they haven’t improved much since I left the hospital, they haven’t gotten any worse. I feel things are manageable at the moment but I’m keeping a very close eye on what my body is doing and how it’s reaction to food as well as my medications.
I’ve got one more day at work before I get a day off but if it’s anything like today was, I’ll be ok. I’m planning on sleeping most of Sunday so I’m ready for next week.

First full day at work yesterday went really well; I felt fine during the day, didn’t get stressed out and, although I was tired when I got home, I still had enough spoons to make an easy dinner of mini pizzas and cheese hot dog bites for me, my fiance and a friend. We even played D&D fifth edition which was my friends first ever play. It was really fun and I can’t wait for the next session. I’m ready to take on day two.

First full day back at work

I hope it goes ok.

Day five of five working in a row tomorrow. It’s only a short day so it shouldn’t be too bad. I’m already quite tired from working the last four days though, and I won’t get much of a lay in tomorrow morning because there are railworks and I have to leave early to get a replacement bus into work. At least I’ll have two days off after to recover before going back to full-time hours on Wednesday.

Humira sorted!

It’s about a week late but I’m finally getting my humira delivery on Monday morning! I got a call from the healthcare company this afternoon; they said a nurse should be in contact to arrange to come round to ensure I administer the doses correctly on Monday, but after that, I should then receive humira every four weeks and be able to give myself the injections no problem. This has made my day.

General update

So, still no sign of my humira. I’ve spoken to the hospital and been bounced around from place to place but no one seems to know anything, so I’ve left a message with the homecare department in hopes they’ll call me back with some news.

Otherwise, I think I’m feeling better. BM have slowed but still aren’t “normal”. I’m able to get near my recommended daily calories but I’m finding it hard with just food so I’m taking fortisip drinks in the morning. My weight is staying put (just under the minimum weight recommend for my height/gender), so I’m not putting anything on but I’m losing anymore either.

I think my insomnia is slowly going too; I woke up around two this morning but didn’t take hours to get back to sleep again so I actually slept for a lot longer than I have been. I hope this continues.

I’m also now working for the rest of the week (although, only short shifts) so I’ll be kept busy. I’m hoping it’ll help take my mind off my flare and just get me back into a normal working routine. There has been talk of possibly cutting some of my hours, which I would rather not do, but we’ll see.