I called my stoma nurse today and got an appointment for Monday because the skin around my stoma has been red and soar for the last few days. I hope it’s nothing serious. I really don’t want to have change my bag type (I really like these ones – drainable, one-piece) so hopefully, I just need to use some barrier cream/wipes for a bit.

Ostomy problems! …again.

I had to do another emergency bag change just now due to seepage. I knew it was going to do it because the bag didn’t feel right last night but I didn’t want to waste a bag, I guess, so I left it. No mess, though, it was easy to sort out. I just hope this isn’t going to be a common problem otherwise I might have change bag type and I don’t really want to do that because I like these bags.

What the hell, stoma?

TMI warning!

So, I was planning on sleeping in this morning but was forced to get up early in order to do an emergency bag change because somehow, the contents had pancaked and was seeping out under the flange. This is the first time anything like this has happened to me so now I’m paranoid. I think I know what caused it though; I had both curly fries and melon last night (not together) and I know already that potato that isn’t mashed doesn’t digest properly for me (meaning it comes out as partly digested). I’m going to try and drink more today and just keep a close eye on my bag just in case it starts to do it again.

And I’m home.

I made it home in one piece! The London Comic Con was amazing and, even though I’m so very tired from all that walking, it was worth it. I cosplayed as Misty from Pokemon for the first two day but chose to just wear civvies for the last day. This was mostly because I only had two yellow tops instead of three (and it was very warm all weekend) but also because I found that, although having my ostomy bag tucked into my waistband wasn’t uncomfortable, it was very hot under the bag so it did sometimes make me think it was full and/or leaking at times. So, for the last day, I just wore it untucked and with a cover on which was a bit cooler.

I got quite a few things from the sellers halls; everyone seemed to be doing lucky bags so I got one from Tofu Cute which had a load of Japanese sweets and drinks in it as well as a couple of plushies. I also got a print from one of the artists in the Comic Village, and my sister bought me a pair of handmade Studio Ghibli hair bows. I have every intention of going again next year but we’ll have to see how I am health-wise.

Day 3 of Comic Con

So far, today has been ok. I’m tired but not overly so, which is good for me given how late in the day it is currently (4pm).

I decided to not cosplay today and I’ll admit I’m a lot more comfortable for it. Having my ostomy bag tucked into my waistband was ok and it wasn’t anywhere near as bad as I thought it might be but it was too hot and I kept worrying about possible leaks. The good thing about cosplaying as Misty though was that my Togepi plush acted as both a support for my stomach wheb I started to ache and as a barrier against crowds, so it wasn’t all bad. I don’t have it with me today but it’s not as busy as it was yesterday.

Day 2 of Comic Con

So, today was quite tiring; we did a lot of walking and I think, combined with yesterday, I may have overdone it a little. However, it was worth it. I’ve had a really great time so far and I’m still looking forward to tomorrow.

I still tucked my ostomy bag into my waistband today but I have found that it gets quite hot which made me think I’d had a leak at one point (even though the bag was fresh on this morning). I won’t be cosplaying tomorrow just because I can’t be bothered with it. It’s not like it’s a difficult costume to put on or anything but I just don’t want to wear it tomorrow. It also means I don’t have to tuck baggie in if I don’t want to – the costume somewhat demands it because the top I’ve got is too long and needs tucking in too.

I’ll be sure to take plenty of pictures and post as many as I can when I get home on Monday. For some reason, the app doesn’t like me posting pictures.

Emergency ostomy kit

So. a while back I said I’d do a post about my emergency kit and what I kept in it, for when I go out. So here it is!

Let’s start with the bag; it’s just a simple, one-compartment, zip-up make-up bag. Nothing big or fancy. It fits into my handbag and, because it’s a make-up bag, it’s discreet.

Next, the contents. So, I always take two ostomy bags (currently uncut because my stoma hasn’t settle on a size yet), two disposal bags, a pair of scissors (I’ve got proper curved ostomy ones but for the kit, I use curved nail scissors because it’s easier than swapping my scissors out every time I want to go anywhere), a measuring template (Charter sent me a small fold-up one with their welcome kit), a small pot for holding water (mine came with some make-up pads in it but you should be able to get empty ones), a travel pack of wet wipes, a handful of dry wipes, adhesive removal spray and a compact mirror. I also keep a little elasticated clip (again, from the Charter welcome kit) which you attach one end to the collar of your shirt/t-shirt/dress and the other to the hem in order to keep it out the way while you sort yourself out. If you don’t have one, ladies, tucking your top/dress/ect up under your bra is just as effective. Otherwise, maybe ask your stoma nurse or whoever you get your supplies from if you they can give you one.

I don’t keep a spare pair of pants in my kit, purely because they don’t fit, but if you can fit a pair in there, do so; there’s nothing worse than having cleaned and changed your bag after an accident but still being stuck in soiled pants.

And that’s it. I hope this was helpful to at least one person.