Tag: medication

News!

I’ve just had the doctor come round and they’ve decided to put me onto humira, starting with four injections today. They’re also going to change the steroids I’m currently on – which I hope is only whilst I’m in here and won’t be yet another eight week course. Provided it all works, I should be home by Wednesday.

Feeling pretty fragile this evening; they forgot to prescribe me my lunchtime meds so I ended up not taking them (even after I mentioned I needed to take them) and now I feel bloated and uncomfortable. I’ve told the nurse so hopefully they give me something to help, and with a bit of luck, I might get some more sleep tonight too.

Update

So I got a call back from my IBD nurse and she’s said I need to drink more water, try eating more grapes (brcaise they are good for aoftebing stools) and stop taking the colesevelam for a couple of days before starting again on half the dose. She said colesevelam can cause constipation so I need to be mindful of that and call again if things don’t improve with the half dose.

I’m feeling really tired today despite having had about nine hours sleep last night. I’m trying to have a chilled out day today but I realised I need to go out to drop off a prescription request at the doctors and get more grapes.

Happy belated New Year, everyone!

I hope everyone’s had a good New Year so far. I’m unfortunately still flaring and I don’t know if the increased mercaptapurine and additional colesevelam are actually working anymore. It’s quite painful after eating and my dinner didn’t stay down last night so I’m feeling a bit unsure. I’ll probably give it another week and then call the helpline if things don’t improve. I also need to book my next infusion; for some reason I wasn’t given an appointment for my next one. I’m starting to feel as though I need them more often.

I’ve spoken to the nurse and I’ve got to have another flexi on Thursday. I just really hope this doesn’t end with me in hospital again. They said it might be an infection, given the time of year, but they still want to see how my colitis is reacting to the meds, just in case.

Been feeling pretty crap this week. It’s been just under two weeks since I finished the prednisolone and I knew I’d have a few withdrawal symptoms like maybe a bit of stomach pain, but I’m still feeling like I’m on the verge of a flare up which is only just being kept at bay by the mercaptapurine.
I’ve been going to bed early and practically falling asleep as soon as my head hits the pillow but when it’s time to get up, I feel like I’ve barely slept at all so I think I’m crashing.
I keep getting cramps in my left side which feels like period pain sometimes (even though it’s not because I’m on the Pill).
On top of that, everything I eat makes me bloat, regardless if it gluten free or not.
At least I only have one more day of work this week.
I have a Fifth Edition session on Sunday afternoon which I’m looking forward to but at the same time wish was another day because I just want to be able to sleep all day Sunday.

Sorry for the lack of updates this weekend, I’ve been sleeping for most of it and I had a bit of a busy morning today. So far, I’m doing ok although I had a bit of a weird stomach cramp this morning which woke me up about three times last night and was also the reason I struggled to go back to sleep after my fiance left for work. It was sort of stabbing around my naval and lasted for about a minute at a time. It went away after I had some tea so I don’t know if it was just that I needed to eat/drink something? I just hope it doesn’t happen again.

Other than that, I think I’m alright. I’ve been able to eat fairly normally today and my appetite is going back to normal I think. It feels a little weird to no long be taking so many meds each day but it’s also a relief; less to remember and worry about.

I’m not normally a big Christmas fan. Don’t get me wrong, I love Christmas, but I’m not one to start decorating in November. I know this year is going to be stressful as it’s the first Christmas since my diagnosis and my parents are worried I won’t be able to eat much of what they usually cook for Christmas dinner. I’ve told them I should be fine so long as I’m not having a bad day (in which case, I’ll just avoid all veg and not have any pudding), but I can’t help but be a little worried that my UC may try and ruin it.

Day 1

Of not being on steroids. I’ve just had lunch and my stomach is hurting already. It’s done this a few times after eating this last week but it’s the only symptom so far. I hope this is just a adjustment thing and not the norm.

I’m continuing with the mesalazine and mercaptapurine, with influxamab infusions every eight weeks. I hope it’s enough. If not, I guess we’ll find out in a few days.