Tag: medication

Despite the mix up with/lack of humira today, I had a good Valentine’s day. My wonderful fiance took me out to TGIFriday’s for dinner and I was able to not only eat all my main meal, but also a strawberry sundae after. Feeling quite full but not bloated. All in all, a good day.

Humira update #2

So, the delivery company have messed up; The hospital arranged for my humira to be delivered weeks ago but the only company in the UK that deals with delivering medication to patient’s homes has messed up somehow (They don’t even have me on their system!). I am now having to wait to see when the hospital can arrange for me to go in as an outpatient to have my next two loading doses at the hospital rather than at home. Very frustrated but at least I know what’s happened and don’t feel like I’ve been forgotten.

Humira update

So, I called the hospital to find out if there was a specific time my humira is meant to be delivered today. They said I should have been contacted by the health care company that deals with the deliveries of medication like humira but when I said I haven’t received any paperwork or phone calls, they said they’d look into it for me. I’m a little concerned that someone’s messed up and I won’t get my injections today. This wouldn’t be a problem if I wasn’t going to be at work for the rest of the week. Now, I’m just waiting for a call from either the hospital or the delivery company. I’m trying to stay positive; I don’t need another anxiety attack.

I have my next humira doses tomorrow but I have no idea when the nurse is meant to come round. I’m guessing they’ll arrive anytime after 8am but I really have no idea. I’m getting up early anyway, just in case, so I really hope I get a decent amount of sleep tonight.

Finally have all of my medication from the hospital

They’ve over-done it a bit though as I know have enough mercaptopurine and mesalasine to last me several months! I’ve got nine weeks of prednisolone (the extra week of 40mg daily was mostly given whilst in hospital, so only eight weeks left). I’m taking Adcal-D3, co-trimoxazole and colicalciferal for the duration of the steroid course, and the next humira doses are in just over a week. Then it’s once every two weeks.

They also gave me some fortisip drinks, like last time, to help get my nutrition intake whilst I recover.

I’m exhausted from going through everything but I’ll admit I’d be totally lost if I didn’t have Medisafe on my phone. For those who don’t know, it’s an app that allows you to list all your medications, when and how many you have to take, and it’ll remind you to take them at the right times. You can “take”, “skip”, or “reschedule” meds which is so much easier than setting alarms all over the place. It can be a tad glitch-y but it’s been mostly fine for me. I’m sure there are other medication apps out there but this is the one I found works for me. Does anyone else you an app like this to keep track of their meds?

So, I still don’t have my meds from the hospital because they didn’t tell the day nurses it needed doing. I now need to call the ward again tomorrow to see if it’s all ready and then, hopefully, go and collect them all. It’s a good thing they had three days worth of prednisolone to give me yesterday otherwise I’d be in trouble. I just hope they also give me some fortisip because food is still a bit of a challenge for me.

Quick update

The doctor came to see me this evening because I had trouble breathing again after dinner. She said it could have been brought on by my anxiety that the humira might stop working like the infliximab did. So she said to not think about it and try and relax. It still looks likes I’ll be going home tomorrow but they want to keep an eye on me until then, just in case. I hope everyone is having a relaxed evening.