They think I have Primary Sclerosing Cholangitis (PSC). They want to do a biopsy to make sure and, if it is PSC, check how advanced it is. There isn’t any treatment or cure (aside from transplant) for it but the specialist doesn’t think I’ll need that for a while. Now, I just need to wait for the biopsy appointment.
Tag: Liver disease
En route to see the liver specialist. I’m hoping he’ll have answers (and maybe even a solution) to what’s been going on with my liver recently.
I had my MRI scan yesterday but I probably won’t get the results for a while though. It took about thirty minutes and apart from it being a little close in the machine, I found it wasn’t that bad. A friend of mine has had a few and she advised me on what to expect. The nurses/technicians gave me ear plugs and headphone which they could talk to me through as well as play music. There were no canulas this time and the pineapple juice was just pineapple juice (something to do with the magnet). Although I don’t usually get claustrophobic, I found it was easier to just lay with my eyes closed and listening to the machine around me. They gave me a panic button just in case but I found I didn’t need it once the scan started.
I’ve got my MRI next week! I sort of know what to expect but does anyone have any tips/advice? They sent a leaflet with the appointment letter explaining I can’t eat before and I’ll need to drink “pineapple juice” when I get there. They may also have to pump dye in too but they struggled to get a cannula in me before my CT scan so I really hope they won’t have to do that this time.
Also, I may know why my Pill has stopped working. I spoke to my doctor this morning about it and she said it could be to do with my liver; that’s where a lot of these things would be absorbed so if it’s not working properly then medications might not work properly. It does make sense; my symptoms started shortly after I noticed my pills not working. The doctor has changed the type of Pill I’m on so hopefully that’ll do the trick.
I’ve got my next consultation with my surgeon in April 2018. I’m not sure how I feel about that; I was anxious about starting the reversal process at first, but now I just want to get it over with. I’m hoping that whatever is wrong with my liver will be easily treatable and not interfere with my surgeries.
Liver update
I saw my surgeon again this morning. He wants to postpone any plans for pouch surgery until after I have seen the liver specialist in January. He’s ordered an MRI scan for after that appointment and then I’ll see my surgeon again in March. I’m not overly happy about having to wait even longer but I’d rather get things sorted with my liver to reduce possible complications during surgery.
The CT scan showed nothing cancerous but it’s possible I have a form of liver disease thats linked to Ulcerative Colitis. I don’t remember exactly what he called it but, according to Google, it might be Primary Sclerosing Cholangitis (PSC), but I’m not sure.