Well, I jinxed myself. Sadly, my stomach cramps have returned in full force and my stoma appears to have stopped working. They’ve given me paracetamol, codeine and oralmorph which has only numbed most of the pain. I’m really worried it’s a blockage of some kind. I haven’t eaten anything that could cause one so it might be scar tissue.
And I was feeling so much better yesterday.
I’ve got a PICC line in now. They haven’t started the TPN yet but I think they are going to soon. I’ve still got my cannula in but that’s only so I’m getting some fluids while I wait. The NG tube is still here. I was hoping they might take it out but when they asperated it last, there was still a bit if green bile coming out. My stoma is still producing green liquid too. The doctor is hoping that by having a few days on TPN, my system might have woken up. We just need stuff to stop coming out of the NG and out of my stoma. Fingers and toes crossed this will all be over by next week.
Sorry for the lack of update yesterday, I was in a lot pain all day, and last night they put in another NG tube. I’m nil by mouth and can only sip water. My throat is sore from the tube, my stomach is still cramping and now my cannula had blown so I can’t have anything to help with either the heat or the pain until they replace it. My stoma is working but it’s alot of green liquid coming out which the nurse said is the same as what I was throwing up over the weekend. They don’t know what is causing my pain and they want to do either another xray or a CT scan to see if my bowel is twisted.
I’m feeling pretty miserable at the moment. All I want to do is sleep but I’m in too much pain and too warm to get comfortable enough. I hope everyone has had a better weekend.
It’s very late where I am right now and, as is quite normal for me in hospitals, I can’t sleep. So, I thought I’d update you all.
Well, surgery went well. I’m on a fentalyn PCA and intravenous paracetamol, have a drain in my side (which doesn’t appear to be draining anything anymore) have a cathatar in, and an oxygen nose tube. The lovely thigh-high stockings they made me wear through surgery were too itchy so I’m now wearing knees-highs instead.
My pain is farely mild, considering, and I felt a lot better when I woke up this time vs last year when I had my colon removed. I had brain fog so I was slurring my words for several hours after I woke up this evening, and I kept having micronaps mid-conversation because of the anaesthetic. I’m annoyingly quite awake now but I will try and sleep as best I can.
Thank you to everyone for supporting me and helping me through this, especially @sillyriceball & @thatchronicfeeling
Sorry I haven’t posted much this week, we’ve been so busy I just haven’t had a chance to do any updates. So, we went to Holland for a week. We stayed with friends and went to a LAN party Friday through to Sunday which was held in a school (so plenty of space, power outlets and free hot drinks from the machines). We had a really great time there and I can’t wait to go back again. We went to Amsterdam to visit the Rijks Museum and the Anne Frank House which were both very interesting and moving. I had a fantastic time over there and was really sad to leave last night but I guess reality ensued. Anyway, as for how my stoma behaved, it was fine. Even when I ate a few things I probably shouldn’t have (onions ect), it didn’t cause any issues. Going through security on the way out there was easy (no questions, no pat down ect) and going through on the way back was fine too despite having a pat down (which they do for everyone). The Security guard who patted me down was fine when I told her I had an ostomy and said she even had a friend who has one. It’s amazing how common they are, we just don’t notice them on other people. So, now I’m back in the UK for the foreseeable future and I return to work again tomorrow which’ll be fun (Read: not).
In other news, I have a date for my reversal surgery! I’ll have the first one to form the J-pouch in June and, provided it goes well, I’ll have the final one to reversal my stoma completely in August/September time.
What Can I Eat 