softisaacfloof:

alljustletters:

Shoutout to people with degenerative and progredient diseases/disabilities! Shoutout to people whose illnesses/disabilities won’t get better and/or will only get worse! Shoutout to people trying to deal with this prognosis and knowing they cannot be healed and having to take meds for the rest of their lives that can only keep their symptoms somewhat in check! 

Shoutout to people who permanently lose abilities all the time! Shoutout to people who are afraid of their future because of this! Shoutout to people who see a rapid decline in their health every day! 

Shoutout to people who know it will kill them or drastically shorten their life expectancy, and to people whose life expectancy isn’t affected much but who are losing quality of life at an alarming rate! 

Shoutout to people who often feel like they can’t go on this way! Shoutout to people who are losing hope!

All of you, all of us, are valuable and important. Your lives matter, you deserve being alive and you are strong and amazing for having come this far. 

You deserve having wishes and goals, you deserve striving for happiness, you deserve being at peace. You also deserve not wanting to think or worry about these things and just existing. 

Your life isn’t worth less if you cannot “accomplish” anything in the eyes of society, and if you only want to survive. You are enough the way you are, and you are good, and you don’t owe anyone.

[paragraph breaks added for accessibility]

whatcanieat:

It wasn’t as nice as a regular base; a bit dry. Otherwise, it was nice and I’m not bloating! Did have normal potato wedges though but I don’t usually have an issue with them.

whatcanieat:

That’s three down, three to go. Then it’s only every fortnight!

whatcanieat:

I’ve gradually slowed down today but I’m not abnormally tired this evening so I’m going to go out with my fiancée for a meal and then to the cinema.
I’m going to try a gluten free meal this evening and hope I don’t bloat. Whilst on the subject, my gluten free recipe book arrived today and I’m looking forward to making loads of stuff on Monday.

whatcanieat:

The feroglobin seems to be working, I’m not as tired as I have been and I’m able to do more work. I’ve just had lunch so I’m hoping it’ll last throughout the afternoon. Fingers crossed I won’t need the extra energy tablets.

whatcanieat:

It’s 0730 on Saturday morning and I’m on my way to work. Just had a dose of Feroglobin which is meant to help with fatigue so I guess we’ll see how the morning goes. I’ve also got some dissolvable energy tablets in my bag just in case. I’m feeling quite tired still but I’m hoping that will change when I get to work. I’ve had my steroids and azathioprine for the day, only my mesalazine and Adcal-D3 left to take later. Hope everyone has a good weekend.

whatcanieat:

Today has been a bit better; the pain has eased somewhat but I can feel it creeping back as I type. I’ve found the fatigue has increased though so, under advice from the local pharmacist, I’m going to try energy/vitamin tablets/liquids and see if they make any difference. I’m also going to try a gluten free diet for the next month in an attempt to manage the bloating and general ugh-ness I feel after lunch. I haven’t had sandwiches for the last couple of days and the bloat has decreased. Fingers crossed this all works out ok and the Azathioprine starts working too.

whatcanieat:

Today wasn’t much better than yesterday. I haven’t had as much stomach pain as yesterday but it’s starting to creep back. I haven’t had any bread today but I did have a couple of those cheese scones I made the other day which didn’t seem to bloat me too much. I’m having pasta for dinner tonight. Maybe not the best of ideas but it’ll fill me up.

I have made a mental note to talk to the pharmacist next to my work for help with vitimin tablets; I’m thinking it might be time I started taking them because my food intake has dropped this last week and I’m not sure I really want to be suffering from malnutrition as well.