My Experience with Ulcerative Colitis – the good, the bad and the messy
Tag: ibd
I had my hair cut! I’m still getting to used to it being so short; I almost regret doing it but what’s done is done. I hope it’s more manageable like this. @cutiespoonies
I’ve had a very lazy day today. I didn’t sleep in as late as I usually do on my days off but I have been doing very little. I’ve eaten a few bits that aren’t especially flare-safe but most of my food today has been safe (cereal, scrambled egg ect.) Unfortunately, the pain in my left side has increased over the last couple of days to the point I’m taking Zapain. I don’t normally need such a strong (for me) painkiller. I’m going to call the helpline tomorrow; I think this classes as becoming worse.
In entirely unrelated news, we’re making huge progress with our rats; we’ve managed to pick them both up and hold them (re: allowed them to run around our shoulders) outside the cage. This makes me very happy.
Been a little self destructive today; I’ve eaten things I knew would be a bad idea and am now paying for it. I wish I had better self control. Still, I’ve a week off work now so I’m going to try to stick to my flare foods as much as possible. Wish me luck!
I had gluten free cereal with milk and a cup of tea for lunch today and I felt ok. This is proof I need to be stricter with myself and refrain from having “bad” foods. Cereal, tea and soup are the way to go, it seems. No more pizza, take aways, fruit or veg (unless it’s in soup or stew).
In other news, I’m off work for a week after tomorrow so it’ll be a good time to get plenty of sleep/rest. I will be going to the gym at least once but I will take it easy; it’s been a couple of weeks since my last work out and I don’t want to exhaust myself. My sister and her fiance are coming to stay with us for a few days on Thursday so I need to make sure I’m not too tired to socialise.
Im in Bristol for work training today and tomorrow. It’s an intense day as well as a long one (left for the train at half six this morning) but I’m just about to have dinner at the hotel then I plan on watching some TV before going to bed.
I’ve had a few stomach cramps today and a rush to the toilet when I finally got off the train. Other than that, I’ve not been too bad. I almost fell asleep after lunch though so maybe an early night might be in order. I’ll try and have a decent breakfast tomorrow so I won’t need to worry too much at lunch or dinner. Depending on when we finish tomorrow, I might see if Yo!Sushi is flare friendly.
I slept for most of yesterday (Monday) and Sunday. I wish I could have more days like that. It felt good to not have to get up for anything but still be able to do a few bits in the afternoon.
The only problem is I still feel tired after something like ten hours sleeping. I wonder if I should spend my week off work next week in bed… It’s not like I have to go anywhere or do anything.
I called the doctor yesterday to see if my results were back but, unfortunately, the test they requested is no longer a routine one so they haven’t even tested it yet! As for my blood test to see if it’s much vitamin D levels that are making my hair fall out, I have to phone the hospital for that because they haven’t sent them to my doctor yet. It’s been over a week.
I’m getting pretty fed up with this flare now; it’s not bad enough for them to do anything but every time I eat, it hurts so I’m trying not to eat much. Even vegetable soup which is usually fine for me is causing issues. I’m not really sure what to do. I can’t tell if I’m getting worse or if I’m just getting used to it.
It’s been three weeks since I finished my last course of prednisolone and two and a half weeks since I started showing symptoms again. I’ve been flaring fully for about a week and a half now and it doesn’t look like it’s going away on its own. The problem is, I’m starting to become used to it so my control over my diet is slipping which means I’ve been allowing myself to have things I know I really shouldn’t. It hasn’t made me any worse (yet), but I know it’s not going to help me feel any better. I don’t know if it’s worth me call the helpline again because they might just say what they did last time which was that they can’t do anything else until I get worse.
I feel a bit stuck in IBD limbo at the moment, and unsure of what to do. I suppose the best thing for me is to take control of my diet again and be stricter with myself. Make sure I stick to my safe foods, like soup and tea, and try to rest as much as I can, even if I am working.
Today I’m talking about IBD awareness because National Crohn’s & Colitis awareness week starts today! National Crohn’s & Colitis awareness week was passed by the US Senate in November 2011 making December 1st through the 7th a week to raise IBD awareness and recognize the efforts of those who care for and support patients living with Inflammatory bowel disease.
This is the 5th National Crohn’s & Colitis Awareness week. Whoo-dee-whooooo!
What Can I Eat 