Tag: ibd

schrodingerspanda:

prochoice-chick:

theadventurepants:

pir8grl:

doodleloser:

dredsina:

I have no concept of the pain scale, like…I just realized that last week I said I was in especially awful hip pain and when my pt asked to rate it I said “3”. And then this week I said I felt a lot better than last week and when she asked me to rate it I said “3”. I really don’t know what the numbers are supposed to be. I know it’s supposed to be out of ten but like. I think I rate the pain by what time of the day it is. Like “i will rate the pain I’m in at a 5 at the end of the day, so compared to what my pain level will be later, what I’m feeling right now is a 3.” I also think i rate in overall pain rather than specific pain? Like, systemically I’m at a five. Some parts will be worse or better but i just rate it all at five because that’s the average

Here’s a pain scale that actually makes sense.

MUCH better than those stupid smile faces.

This is amazingly helpful.

Please show this to children. I could have used this when I was in the hospital with mastoiditis.

Like your asking a child to tell you what level of pain they are in?? All I know if I want to scream and go to sleep

My life exists on the border between 5 and 6. Sometimes it’s worse, but rarely ever better than a 5. A 4 is a good day.

I always thought the “rate your pain” thing was a bit pointless because my 5 could be someone else’s 7, but seeing it explained like this has made it a lot clearer. Thankfully, my doctors don’t ask me to rate my pain; instead they test how tender my stomach is by pushing on it gently and seeing how I react (ie. If I winced or say it hurt ect.).

snorlax-and-co:

The effects of a dissociative disorder may include:

  • gaps in your memory
  • finding yourself in a strange place without knowing how you got there
  • out-of-body experiences
  • loss of feeling in parts of your body
  • distorted views of your body
  • forgetting important personal information
  • being unable to recognise your image in a mirror
  • a sense of detachment from your emotions
  • the impression of watching a movie of yourself
  • feelings of being unreal
  • internal voices and dialogue
  • feeling detached from the world
  • forgetting appointments
  • feeling that a customary environment is unfamiliar
  • a sense that what is happening is unreal
  • forgetting a talent or learned skill
  • a sense that people you know are strangers
  • a perception of objects changing shape, colour or size
  • feeling you don’t know who you are
  • acting like different people, including child-like behaviour
  • being unsure of the boundaries between yourself and others
  • feeling like a stranger to yourself
  • being confused about your sexuality or gender
  • feeling like there are different people inside you
  • referring to yourself as ‘we’
  • being told by others that you have behaved out of character
  • finding items in your possession that you don’t remember buying or receiving
  • writing in different handwriting
  • having knowledge of a subject you don’t recall studying.

I don’t normally post about my DR but I feel this kinda hits the nail on the head when trying to describe what it can be like.

Source: snorlax-and-co

Had a very successful dinner with a friend I haven’t seen in ages. I made a mango chicken stir-fry, and then had hot gluten-free brownies with vanilla ice cream and homemade toffee sauce for pudding.

So far, my gut is behaving. Now, I’m off to bed for some well-earned sleep.

Day #1 back at work

I went back to work today, but only for the afternoon because the hospital recommended a phased return to work instead of going straight back into full days. It was tiring, even though we weren’t busy, but I feel ok. My legs ache from standing a lot but my stomach/gut have behaved themselves, mostly.

I’m looking forward to having a friend round for dinner this evening; I’m going to attempt stir-fried mango chicken with noodles.

First day back at work today after three weeks off. I’m both looking forward to it but also anxious incase it’s too much too soon. I’m only doing a half day so hopefully shouldn’t be too stressful. Wish me luck!

So, because of the current political situation over here, as well as medical expenses getting much worse, I may end up making an emergency exit from the US to marry and live with my gf in the UK (so I can get on the healthcare program out there, because socialized medicine). If this emergency plan is used, I was wondering if there are any spoonies in the UK who know of any good doctors that I might be able to bring my records to (bonus points if it’s near Southampton). I don’t want to start over

spooniestrong:

UK Spoonies, please help? 💙

I’m currently being seen by the IBD team in Southampton General Hospital. They are a fantastic group of specialists and have looked after me so well. Once you register with an NHS doctor near wherever you’re going to live, they should do a check-up in order to assess your health, and, from there, refer you to someone on the IBD team so you can get the correct care. Hope this is helpful.