simply perfect chocolate cupcakes | baking a moment

Not IBD-related but I’m feeling miserable. I saw these and have decided to make them when I get home.

On IV pain killers now because my cramps have increased quite a bit this evening. I’m going to request to see the doctor because this feels like it’s only getting worse.

And to make the day even worse, it’s hailing. I made it off ward briefly though, so not all bad. My legs don’t feel so stiff today so if I keep going for little walks, I should be ok.

Less than seven hours and I’m needing yet another new canula. Not very impressed with my veins right now.

Yet another canula. This one’s a little uncomfortable but it’s only just gone in so I expected as much. Hopefully it’ll settle and they won’t need to change it too soon.

Had a weird day yesterday; no BM after 10am all the way until this morning at one. All the while, I felt like a balloon was sitting in the stomach and I was very uncomfortable. I have since had multiple BM but it’s still pretty slow going. I’m hoping it was just a one off and I’ll be back on track today.
Also, I had an heartrate of around 45-58 this morning which is extremely low for me. I told the nurse and they’re keeping an eye on that but, again, just hoping it was a weird blip.
Fingers crossed the doctor will be round later today.

Friday update

Still haven’t seen my primary doctor today but he’s meant to be in over the weekend so hopefully I’ll get to talk to him then.
For now, they’re keeping me on the IV steroids and antibiotics as it looks like they’re working. I’m guessing it’ll be at least another couple of days before the infection is gone but at least my inflammatory markers are down so fingers crossed, once the c diff is completely clear, I’ll be able to go home.
I really want to get out of here; being in the same small room for over a week is making me a little depressed. I’ll be so happy when they send me home.

azaizall-witch-of-shadows:

dark-night-shining:

I kind of really needed this…

This actually made me feel better

I needed this today. Thanks.

Source: thelatestkate

Hospital-selfie because I’m trying to stay positive and because I can.

Thank you to @natsufatsu, @thatchronicfeeling, and @sillyriceball for all your kind words and helpful advise. I will be talking to my doctor again tomorrow about starting trials for vedolizumab but I may still request to speak to the surgical team just so I have a better understanding of what they can do and what the risks are. That way, I’ll have all the information and I think I’ll start to feel a lot better about my current health situation.

Thank you @natsufatsu. It is a difficult decision to make and it’s good to hear from you and get others opinions on these things. For now, I have decided I’m going to opt for trialling at least the vedolizumab before making any more permanent decisions. I spoke to my sister, @sillyriceball, about it as well and she has been very helpful for bouncing ideas off of too. She agrees I should try at least this one last drug. I don’t want to skip it in case it does work, and even if it only gives me a few months relief, I think it’s worth it. I’ve been a bit depressed about being in hospital again and just want things to go back to some level of normal.