Tag: hospital

Warning! Slightly graphic post ahead!

Flexi all done (at last). The prep was just a standard enema but it was so painful! I had to have a nurse assist me. Then I was in a lot of pain for about an hour where I wanted to go to the bathroom but there wasn’t anything to pass so I just had to wait for the sensation to go. The flexi itself was also quite painful but the sedative took the edge off, at least. The nurse even offered me his hand to squeeze.

I’m feeling pretty bloated from the gas they pumped into me so I’m still hurting but nowhere near as badly as I was before.
The plan now is to rest before lunch, eat as much lunch as I can (only ordered a small omlette and jelly for after), then to rest for the afternoon before my parents come to visit me.

Sorry if anyone found this a bit of an overshare but I feel sometimes you can’t always hide the “gross” side of having IBD.

I hope you are all having a relaxed and spoon-filled day.

Saturday morning update

Flexi day today. They haven’t said when exactly but it should be over by one this afternoon. Shame I won’t know what’s what until Monday though; the ward doctors are few and far between on weekends. I suppose if there is anything they think I need to be told/needs doing and can’t wait until Monday, they’ll tell me.

Still waiting to see a doctor but one of the IBD nurses has just been round and they’ve got a flexi booked for me for tomorrow. She said she’ll come round on Monday afternoon to go over the results and then, I guess, we’ll go from there.

The steroids aren’t doing a whole lot so I may be in here a while longer if they can’t find a solution soon.

Another check-in

The doctor has just been round. He want to do a few more blood tests and stop the colesevelam for now because it’s not really doing much for me. He also spoke about my infusions again so the possibility of them changing it is looking more likely. They might want to do a flexi tomorrow but it’s otherwise steroids for today.

Day three

In a new ward, with new ward-mates (most of whom were moved in during the early hours of this morning, like me) and a team of lovely nurses. I’m not sure if I’ll see a doctor today (doubtful as he only came round to me yesterday) but at least I’ll have time to dose and catch up on some sleep if they just leave me alone today. I was going to try and move around a bit more this time because staying in a bed for days on end makes my legs very stiff when I get out but that might have to wait until tomorrow; I’m badly lacking in spoons today.

Just an update

I’ve had an xray on my stomach which hasn’t shown anything bad. They want to see if I react positively to the steroids over the next couple of days but if not, they’re going to do yet another flexi and possibly change my infusion drug. The doctor said it could be due to hypersensitivity within my gut after being inflamed for a while.

Also, my cannula is hurting when they give me my steroids through it so they’re going to change it in a little while.

Thank you to @natsufatsu and @sabinasanfanfic for your kind messages.

So, I’m still flaring and there’s nothing they can do about it. I realise there’s not much they can do besides put me back on steroids, but they’ve made it pretty clear they really don’t want to do that unless they absolutely have to.
I’ve been told to call my IBD nurse again if my symptoms get worse but that’ll likely put me in hospital again. I don’t think I could handle being hospitalised this close to Christmas.