spooniestrong:

March is Autoimmune Disease Awareness Month – show your support and raise awareness by sharing your story or the story of a loved one that is battling autoimmune disease.

Send a picture (or several!) and your story to SpoonieStrong@gmail.com and I’ll feature it on the Facebook & Tumblr pages. Let’s make autoimmune disease visible!

*love & spoons* 💙

So, because of the current political situation over here, as well as medical expenses getting much worse, I may end up making an emergency exit from the US to marry and live with my gf in the UK (so I can get on the healthcare program out there, because socialized medicine). If this emergency plan is used, I was wondering if there are any spoonies in the UK who know of any good doctors that I might be able to bring my records to (bonus points if it’s near Southampton). I don’t want to start over

spooniestrong:

UK Spoonies, please help? 💙

I’m currently being seen by the IBD team in Southampton General Hospital. They are a fantastic group of specialists and have looked after me so well. Once you register with an NHS doctor near wherever you’re going to live, they should do a check-up in order to assess your health, and, from there, refer you to someone on the IBD team so you can get the correct care. Hope this is helpful.

You might be a spoonie if….

thecomposerandherchorus:

cripples-r-us-swag:

spoonie-isms:

You’ve had to listen to someone talk about how they don’t take meds because they’re “all natural” and had to both keep a straight face and not slap someone

Even worse, last night I asked a co-worker how her friend that has colitis is doing, and if she is on meds and feeling better…..she kinda looked up and said “Ummm she’s anti-medication, but I’m not sure what she’s doing, she’s definitely feeling better though she wants to go out and drink!”

Jeez….oh to be young and stupid and then nearly die because you believed that “positive thinking” actually works for actual medical issues :/

I’ve been told more than once to “think positively” and I’ll feel better. It’s very hard not to slap people when they say stuff like that.