So, I called the hospital to find out if there was a specific time my humira is meant to be delivered today. They said I should have been contacted by the health care company that deals with the deliveries of medication like humira but when I said I haven’t received any paperwork or phone calls, they said they’d look into it for me. I’m a little concerned that someone’s messed up and I won’t get my injections today. This wouldn’t be a problem if I wasn’t going to be at work for the rest of the week. Now, I’m just waiting for a call from either the hospital or the delivery company. I’m trying to stay positive; I don’t need another anxiety attack.
I have my next humira doses tomorrow but I have no idea when the nurse is meant to come round. I’m guessing they’ll arrive anytime after 8am but I really have no idea. I’m getting up early anyway, just in case, so I really hope I get a decent amount of sleep tonight.
I have no concept of the pain scale, like…I just realized that last week I said I was in especially awful hip pain and when my pt asked to rate it I said “3”. And then this week I said I felt a lot better than last week and when she asked me to rate it I said “3”. I really don’t know what the numbers are supposed to be. I know it’s supposed to be out of ten but like. I think I rate the pain by what time of the day it is. Like “i will rate the pain I’m in at a 5 at the end of the day, so compared to what my pain level will be later, what I’m feeling right now is a 3.” I also think i rate in overall pain rather than specific pain? Like, systemically I’m at a five. Some parts will be worse or better but i just rate it all at five because that’s the average
Please show this to children. I could have used this when I was in the hospital with mastoiditis.
Like your asking a child to tell you what level of pain they are in?? All I know if I want to scream and go to sleep
My life exists on the border between 5 and 6. Sometimes it’s worse, but rarely ever better than a 5. A 4 is a good day.
I always thought the “rate your pain” thing was a bit pointless because my 5 could be someone else’s 7, but seeing it explained like this has made it a lot clearer. Thankfully, my doctors don’t ask me to rate my pain; instead they test how tender my stomach is by pushing on it gently and seeing how I react (ie. If I winced or say it hurt ect.).
Had a very successful dinner with a friend I haven’t seen in ages. I made a mango chicken stir-fry, and then had hot gluten-free brownies with vanilla ice cream and homemade toffee sauce for pudding.
So far, my gut is behaving. Now, I’m off to bed for some well-earned sleep.
I went back to work today, but only for the afternoon because the hospital recommended a phased return to work instead of going straight back into full days. It was tiring, even though we weren’t busy, but I feel ok. My legs ache from standing a lot but my stomach/gut have behaved themselves, mostly.
I’m looking forward to having a friend round for dinner this evening; I’m going to attempt stir-fried mango chicken with noodles.
First day back at work today after three weeks off. I’m both looking forward to it but also anxious incase it’s too much too soon. I’m only doing a half day so hopefully shouldn’t be too stressful. Wish me luck!
I’m currently being seen by the IBD team in Southampton General Hospital. They are a fantastic group of specialists and have looked after me so well. Once you register with an NHS doctor near wherever you’re going to live, they should do a check-up in order to assess your health, and, from there, refer you to someone on the IBD team so you can get the correct care. Hope this is helpful.
More pictures of my freshly cooked gluten-free chocolate and cherry brownies. Still warm and very gooey.
Freshly cooked gluten-free chocolate and cherry brownies.
What Can I Eat 