I’m rattling again…

whatcanieat:

So I’m down to six daily steroids now and I’m on the Azathioprine. The steroids don’t seem to be having any negative effects on me (like weight issues or insomnia) and seem to be doing what they are meant to be which is boosting my mesalazine. I can’t tell what the Azathioprine is doing yet but I guess we’ll see after a week or so of taking them. Fingers crossed it’ll mean I won’t have to be on steroids again after this course is up in six weeks.

Chocolate tea

whatcanieat:

It sounds disgusting but it’s not bad. It smells like dark chocolate and has a tea-like taste with a hint of cocoa. It helped me get to sleep last night so I think I’ll have to get some more (I only had the one teabag). Also, you can use the cocoa shells in the used bag as plant food. I’m going to see what it does for cacti.

whatcanieat:

I’ve been having mostly fruit these last couple of days to make up for having too much pizza. I endulged a little late night at my parents bbq but I didn’t over eat; having only one burger, one hot dog and my fill of potatoes and plain chicken which my dad did special for me.
I’m being good and having a chicken pie with veg for dinner tonight. I might have a little chocolate later to cheer me up though.

whatcanieat:

I’ve started playing Pokemon Go yesterday evening and I’ve got to say I’m enjoying it. It means I have an excuse to go for more walks with my partner if nothing else.
As for how my meds are treating me, I’m still taking seven steroids each morning this week but they don’t seem to be making me as bouncy as I was when taking eight. I still need to check with the hospital about my Azathioprine but I’m hoping to start those soon too.

Second week

whatcanieat:

First dose of seven steroids today. I wasn’t quite as bouncy today but then I did spend the best part of five hours wandering around the town centre, window shopping with my mum and sister and her fiancée. I’ve done over 12000 steps according to my health app. I’m enjoying the first session of a new campaign of fifth D&D. Playing a Dragonborn Cleric.

Escape Rooms and IBD

whatcanieat:

For anyone who is looking for something interesting to do with friends, Escape Rooms are a great activity. Unless you have IBD where the thought of being locked in a room for over an hour without access to a toilet is very daunting.
This is how I felt at first. But then I did a little research and it turns out all Escape Rooms have an emergency release on the door so you can get out anytime you need to. So long as you let the Game Masters know what you’re doing, you shouldn’t have any problems.
So, if you’re thinking about doing an Escape Room but think your IBD will stop you from enjoying it, it won’t.

The reason I’m posting about this is because I did one yesterday as a sort of belated birthday treat for myself and, although we were in there for an hour and twenty minutes (we completed it just within the time limit), I was ok because we had a walky-talky to ask the GM for help if we needed it/leave to use the facilities.