whatcanieat:

I barely slept and I was paranoid I was going to knock my cannula so I kept it outside the covers despite it being really cold last night. I tried to sleep this morning before they came round with meds but no such luck. My blood pressure was high and my stomach is hurting again. On top of that, my Pill has stopped working so my monthly cycle has started. Just what I need.

whatcanieat:

I’ve had all my meds and suppliments and now I feel quite stuffed. I’m hoping for an uneventful night of just sleep. And, at most, one bathroom break. Not going to happen, of course, but a girl can dream.

whatcanieat:

thegreatspoonfight:

Note to self: please stop comparing yourself to able-bodied people. You are not able-bodied and you are not going to be able to be productive in the same way that they are. It doesn’t mean that you are any less impressive. You are doing your best with the hand that you were dealt. That is impressive as hell. That is more than enough. You are more than enough.

I needed this.

whatcanieat:

No infliximab infusion for me today. They’re waiting until Monday as the doctor said yesterday morning, so I’ve got another two days of steroids and blood tests and nutrition suppliments. I get why but it doesn’t make me feel any better about being in here.

whatcanieat:

I might be getting my infliximab infusion sooner than I thought; the nurse who comes round with the evening meds has said they might be doing it over the weekend but he’ll check and let me know. Fingers and toes crossed!

whatcanieat:

She said what I’m doing with my reduced-gluten diet is a good move if I’m finding it’s working for me so I’ll be continuing with that when I get home. I have cheated a little since being in the hospital but not a lot. Only a couple of little things like having crackers and bread at lunch today, and crumbles at dinner. I haven’t bloated from the bread today but then my stomach is still a little funny at the moment but that’s possibly from the jelly sweets I had yesterday.

So, what have I learnt?
▪ Not to have jelly sweets when I’m flaring
▪ I’m not celiac but a reduction in gluten is a benifit
▪ I need to make sure I take suppliments when I’m flaring
▪ And that Fortisip drinks are a great source of nutrients when I’m flaring as they are easy on the digestive system and don’t taste too bad

I think I’ll be ok. As much as being in hospital sucks, it does teach you a lot when you get to talk to the right people like dieticians. She also said that I can always see them as an outpatient if I need more advice so I’m feeling the support and a lot more confident that I’ll be looked after as and when I need it.

whatcanieat:

So, they want to carry on with intravenous steroids over the weekend and, provided my blood tests come back ok, they’ll move me back onto oral steroids (ugh) and start the infliximab infusion on Monday. They want to keep me on the mesalazine and mercaptopurine for now so they might want to put me on antibiotics as well to stop my immunity from plummeting even more when I get home. But the good news is I might be going home on Tuesday!

whatcanieat:

The dietitian is meant to come round tomorrow so I might finally get some food plan advice. The infliximab infusion has been set back because they needed to retake some blood as there wasn’t enough to test. I’m hoping they’ll start that soon so I’m not in here too far into next week. I don’t think my new manager will love me for starting her first week in hospital. Although, she does know something about UC as she’s had similar issues but doesn’t have a diagnosis yet.