
You’re a person. Not a problem. #sicknotweak #chronicpain #chronicillness #chroniclife #spoonie #spoonielife #rheum #lupus #eds #migraines #invisibleillness #lupusawareness #raredisease

You’re a person. Not a problem. #sicknotweak #chronicpain #chronicillness #chroniclife #spoonie #spoonielife #rheum #lupus #eds #migraines #invisibleillness #lupusawareness #raredisease
Not IBD-related but these were too cute not to share. I’m almost ready for Halloween.
Why does my stomach have to hurt and bloat? I haven’t had much to eat today at all and I’m way under my calories for the day. I expected the cramps but not the bloat. I think I’m just going to leave it at that and have an early night.

Finished my six day working week! I’ve had a bit of a boring day but it went somewhat quickly. I’m now about to dig into homemade gluten-free macaroni cheese made with just gluten-free pasta, cheese and milk.
My stomach has been ok today but then I haven’t really eaten that much aside from a gingerbread man and the last of my gluten-free brownies.

It’s Sunday morning and I’m on my way to work the sixth (but last) day in a row this week, so I thought I’d share the first decent picture of rat #2, Ysrela. She is the shy one so I’m really glad to have got such a good picture of her. We have named her more adventurous sister Zynaida.
Work today will likely be boring because we are non-testing (I work in an opticians) which means it’ll be me and one other colleagues on the shop floor all day. No one else. It’s a short day at least so I’m looking forward to going home and having a nice chilled out evening before I need to get up for my blood test tomorrow morning.
I keep seeing post about how other spoonies have people who were once friends but left them when they found out they were sick. I am so grateful my (admittedly small) circle of friends have stuck by me so far, even though I’ve had to cancel plans because of my UC. I feel so guilty when I’m not able to do something because I feel sick (and cancel literally the last minute) but they are always so supportive and understanding; they never ask questions, they just accept and stand by me. I am so lucky.

Not IBD-related but we have rats! Here is a little picture of one of them chewing on some paper. Her sister is really shy and hiding at the moment.
The plot of Toy Story is apparently facinating at four in the morning. Or at least, my brain thinks so. I woke up for no apparent reason, went to the bathroom, and then spent the next hour and a half trying to stop thinking so I could go back to sleep. I’m so tired. I will need lots of caramel tea today.
My stomach is still hurting too but not any more than usual so the pizza last night was neither a good nor bad idea. It seems that whatever I eat, it’s going to hurt. If it continues into next week I’ll call my doctor and see what she can recommend.
I’m going to try tomato and cheese pizza tonight. I know it’s not a “plain” food but it’s simple, non-spicy, doesn’t make me bloat and it tastes good. I think the pain in my stomach is going to happen whatever I eat.
The caramel tea I had this morning seems to have done the trick; I’m still tired but not as bad as I was. My stomach is still hurting but the bloat has gone down quite a bit (which could be to do with my not eating as much). My recommended daily calorie intake is asbout 1800 but this week I’ve only managed 1600. I don’t normally count calories, but I do keep track of it on my phone so I know roughly how I’m doing. I need to try and eat a little more so I don’t end up losing weight. I’ve tried a Slim fast shake as part of my lunch today to try and get some extra nutrients in me. I prefer Fortisip but they’re a bit more expensive and I don’t want to become reliant on them.
I’m also trying to drink more again; Plant Nanny recommends 2 litres of water per day for me which I’m just about managing.
At least the day is going relatively fast. I just hope it continues that way.