First full day at work yesterday went really well; I felt fine during the day, didn’t get stressed out and, although I was tired when I got home, I still had enough spoons to make an easy dinner of mini pizzas and cheese hot dog bites for me, my fiance and a friend. We even played D&D fifth edition which was my friends first ever play. It was really fun and I can’t wait for the next session. I’m ready to take on day two.

I took my last two loading shots of humira last night and it all went fine. I’ll probably get a call to arrange for a nurse to come round and help me later but I’ll just explain that I can do it on my own.

My fiance said it sounded like I’d been shot because of the loud click the pens make when used. The first one wasn’t painful but I felt the needle go in. The second one I didn’t feel at all though so I’m feeling pretty happy about taking them without any issues.

The only thing I struggle with is keeping hold of the pinch of skin as I wait for the yellow bit to appear in the window to show it’s done. I’m sure I’ll get better at it though the more I do it.

I’ve had a productive day today; got my humira delivered this morning (no one’s arranged to come round to help me take it but I’m feeling pretty ok to take it on my own because I did three in the hospital, so I’ll be taking the next two doses tonight), I cleaned out the rats, went out and got a few cooking supplies, and then made gluten-free toffee cupcakes and chocolate brownies.
I’m feeling a lot better today but I’m a little tired now. Looking forward to seeing a friend (who I don’t get to see very often) tomorrow.

Day five of five working in a row tomorrow. It’s only a short day so it shouldn’t be too bad. I’m already quite tired from working the last four days though, and I won’t get much of a lay in tomorrow morning because there are railworks and I have to leave early to get a replacement bus into work. At least I’ll have two days off after to recover before going back to full-time hours on Wednesday.

Humira sorted!

It’s about a week late but I’m finally getting my humira delivery on Monday morning! I got a call from the healthcare company this afternoon; they said a nurse should be in contact to arrange to come round to ensure I administer the doses correctly on Monday, but after that, I should then receive humira every four weeks and be able to give myself the injections no problem. This has made my day.

General update

So, still no sign of my humira. I’ve spoken to the hospital and been bounced around from place to place but no one seems to know anything, so I’ve left a message with the homecare department in hopes they’ll call me back with some news.

Otherwise, I think I’m feeling better. BM have slowed but still aren’t “normal”. I’m able to get near my recommended daily calories but I’m finding it hard with just food so I’m taking fortisip drinks in the morning. My weight is staying put (just under the minimum weight recommend for my height/gender), so I’m not putting anything on but I’m losing anymore either.

I think my insomnia is slowly going too; I woke up around two this morning but didn’t take hours to get back to sleep again so I actually slept for a lot longer than I have been. I hope this continues.

I’m also now working for the rest of the week (although, only short shifts) so I’ll be kept busy. I’m hoping it’ll help take my mind off my flare and just get me back into a normal working routine. There has been talk of possibly cutting some of my hours, which I would rather not do, but we’ll see.