Emergency ostomy kit

So. a while back I said I’d do a post about my emergency kit and what I kept in it, for when I go out. So here it is!

Let’s start with the bag; it’s just a simple, one-compartment, zip-up make-up bag. Nothing big or fancy. It fits into my handbag and, because it’s a make-up bag, it’s discreet.

Next, the contents. So, I always take two ostomy bags (currently uncut because my stoma hasn’t settle on a size yet), two disposal bags, a pair of scissors (I’ve got proper curved ostomy ones but for the kit, I use curved nail scissors because it’s easier than swapping my scissors out every time I want to go anywhere), a measuring template (Charter sent me a small fold-up one with their welcome kit), a small pot for holding water (mine came with some make-up pads in it but you should be able to get empty ones), a travel pack of wet wipes, a handful of dry wipes, adhesive removal spray and a compact mirror. I also keep a little elasticated clip (again, from the Charter welcome kit) which you attach one end to the collar of your shirt/t-shirt/dress and the other to the hem in order to keep it out the way while you sort yourself out. If you don’t have one, ladies, tucking your top/dress/ect up under your bra is just as effective. Otherwise, maybe ask your stoma nurse or whoever you get your supplies from if you they can give you one.

I don’t keep a spare pair of pants in my kit, purely because they don’t fit, but if you can fit a pair in there, do so; there’s nothing worse than having cleaned and changed your bag after an accident but still being stuck in soiled pants.

And that’s it. I hope this was helpful to at least one person.

Third check-up

I had my third stoma check-up this morning. The nurse is really happy with how my stoma is looking at the moment; she said the separation her colleague noticed last time is normal and seems to be healing ok so she’s not worried. Next appointment is in three months unless I have any problems.

Also, I only have another week and a bit of steroids then I stop taking them (hopefully for the last time)! I can’t wait because it feels like I’ve been on them forever. They make my stomach and face bloat, both of which have gone down quite a bit now that I’ve tapered to a low dose, and my appetite goes from “meh, food” to “EAT EVERYTHING IN SIGHT!” so it’ll be nice to finally finish them once and for all.

This was a couple of minutes after standing, walking about five slow steps and sitting back down again.

To answer @bendywarrior ’s questions, it is much lower when I’m laid down (between 70 and 90) but this is normal for me if I’m standing or sitting down. It does slow slightly if I go from standing to sitting sometimes too.

I don’t remember if I’ve already mentioned this but I’ve had an abnormally high resting heart rate since leaving the hospital at the beginning of April. (And by high, I mean consistently higher than 110bpm).
I have since spoken to my GP and had a blood test to check my potassium levels, which came back fine, as well as an ECG. The ECG showed a regular but high heart rate of around 90-100 so they’ve referred me to the hospital out-patient cardio clinic to have another type of ECG (the proper name of which escapes me) where they put goop on your chest and use a scanner to watch your heart beating. Fingers crossed they’ll figure out what’s causing it. I’m still on prednisolone, which I know can cause a rise in heart rate, but it’s never been this high before. I’m hoping it’s nothing serious. Someone from IBDSuperheroes has suggested it could be the beginnings of POTS so I’ll talk to the doctor when I go for the ECG.