Tag: ulcerative colitis

Day 3

Things seem to be going ok; I’ve only had a few stomach cramps and food is passing mostly painlessly. I’m staying clear of spicey or overly seasoned food, and I’m only having a few fruit and veg as these can irritate my gut. I finding my appetite is smaller now and I’m sleeping better too.

Day 1

Of not being on steroids. I’ve just had lunch and my stomach is hurting already. It’s done this a few times after eating this last week but it’s the only symptom so far. I hope this is just a adjustment thing and not the norm.

I’m continuing with the mesalazine and mercaptapurine, with influxamab infusions every eight weeks. I hope it’s enough. If not, I guess we’ll find out in a few days.

Only three more days until I finish the predinsolone. I’m still not sure how I feel about it; on the plus side, I’ll be off the steroids so no more horrible pred-side effects. On the down side, I don’t want a repeat of what happened last time I came off them and end up in hospital because of a flare-up. I don’t think a relapse is likely as the only symptom I’ve had recently is stomach pain, but I can’t help but think things may get worse once I come off them completely. I’ve got my appointment with my GI on Monday but it’s only a follow-up for the mercaptopurine. I’ll be sure to mention any increase in symptoms as well as my height resting heart rate to him. I don’t think he can do much about my heart rate but ti’s probably still worth mentioning.

I tried a Rule of Crumb gluten-free chocolate muffin for lunch and it was great! Very yummy. Problem is my stomach has been hurting on and off all day so, aside from a yogurt, it’s the only thing I’ve eaten. I think the pain is because I’m only taking 5mg of prednisolone now so it may be that I don’t eat much else today.

Last week!

Of being on steroids and I think I’m ok. I did have a bit of stomach pain earlier but that seems to have settled now. The need for the bathroom is a little worse than it has been but nothing dramatic has happened yet. I’m still a little anxious about stopping next week but I think the mercaptopurine should be enough to keep me mostly in remission. I’m seeing my GI this Monday so I’ll be able to express any concerns then as I’ll have a better idea of what it’ll be like without the prednisolone.

I’m trying to eat as normally as I can, sticking to mostly gluten-free and only eating what I can instead of trying to force myself to eat in order to finish a meal/meet calorie goals. So far, I’ve only had two days in the last week where I haven’t reached my calorie goal but also a couple where I’ve gone over so it sort of balances out.

While on the subject of food, I got my Rule of Crumb delivery yesterday and I’ve already tried the breaded chicken. To say it was good would be an understatement; I will definitely be ordering from them again. I haven’t tried the fish, bread or muffins yet but I will, hopefully soon, and report back. Thank you to @glutenfreecuppatea for posting about it and leading me to investigate.