Flexi day today. They haven’t said when exactly but it should be over by one this afternoon. Shame I won’t know what’s what until Monday though; the ward doctors are few and far between on weekends. I suppose if there is anything they think I need to be told/needs doing and can’t wait until Monday, they’ll tell me.
Tag: ulcerative colitis
[drawing of a green elephant saying “It’s okay if today is not a good day for you. It will be over soon and you’ll have plenty of good days again.” in a green speech bubble.]
Still waiting to see a doctor but one of the IBD nurses has just been round and they’ve got a flexi booked for me for tomorrow. She said she’ll come round on Monday afternoon to go over the results and then, I guess, we’ll go from there.
The steroids aren’t doing a whole lot so I may be in here a while longer if they can’t find a solution soon.
Another check-in
The doctor has just been round. He want to do a few more blood tests and stop the colesevelam for now because it’s not really doing much for me. He also spoke about my infusions again so the possibility of them changing it is looking more likely. They might want to do a flexi tomorrow but it’s otherwise steroids for today.
Day three
In a new ward, with new ward-mates (most of whom were moved in during the early hours of this morning, like me) and a team of lovely nurses. I’m not sure if I’ll see a doctor today (doubtful as he only came round to me yesterday) but at least I’ll have time to dose and catch up on some sleep if they just leave me alone today. I was going to try and move around a bit more this time because staying in a bed for days on end makes my legs very stiff when I get out but that might have to wait until tomorrow; I’m badly lacking in spoons today.
It’s 1am and they want to move me to another ward?! I guess time really doesn’t exist in hospitals.
You might be a spoonie if….
You’ve had to listen to someone talk about how they don’t take meds because they’re “all natural” and had to both keep a straight face and not slap someone
Even worse, last night I asked a co-worker how her friend that has colitis is doing, and if she is on meds and feeling better…..she kinda looked up and said “Ummm she’s anti-medication, but I’m not sure what she’s doing, she’s definitely feeling better though she wants to go out and drink!”
Jeez….oh to be young and stupid and then nearly die because you believed that “positive thinking” actually works for actual medical issues
I’ve been told more than once to “think positively” and I’ll feel better. It’s very hard not to slap people when they say stuff like that.
Just an update
I’ve had an xray on my stomach which hasn’t shown anything bad. They want to see if I react positively to the steroids over the next couple of days but if not, they’re going to do yet another flexi and possibly change my infusion drug. The doctor said it could be due to hypersensitivity within my gut after being inflamed for a while.
Also, my cannula is hurting when they give me my steroids through it so they’re going to change it in a little while.
Thank you to @natsufatsu and @sabinasanfanfic for your kind messages.
Well, I’m in the hospital again
They’ve done blood tests, samples and have mentioned doing an admoninal xray to determine if it’s a UC flare or an infection. They’ve already started the intravenous steroids so hopefully they’ll work and I won’t need antibiotics.
What Can I Eat 