Enjoying a quiet evening watching NXT and drinking tea. @cutiespoonies

So, I still don’t have my meds from the hospital because they didn’t tell the day nurses it needed doing. I now need to call the ward again tomorrow to see if it’s all ready and then, hopefully, go and collect them all. It’s a good thing they had three days worth of prednisolone to give me yesterday otherwise I’d be in trouble. I just hope they also give me some fortisip because food is still a bit of a challenge for me.

Breakfast of champions.

I’m home!

It took over seven hours but I finally got to leave the hospital. I need to return tomorrow to collect my medication but that’s it. Now to relax and recovery for the next week.

I’m going home today!

They need to finalise my paperwork and meds so it’ll be another couple of hours but I’ll be sleeping in my own bed tonight.

The doctor said I need to take it easy for the next week or so because of, not just the physical illness, but also the stress of it all. It does mean another week off work but I think it’s what I need; to heal in my own space.

My pain has subsided now too so I’m feeling a lot better than I was this morning. It seems to be mornings are painful, regardless, but it goes after a little while. I’ll just have to keep myself dosed up on painkillers.

I’m in quite a bit of pain this morning so the likelihood of me going home today is pretty low. I haven’t seen the doctors yet so I guess we’ll see.

I may have jinxed myself…

The doctors came round this morning to see how I was feeling and check how many BM I’m having daily. He looked over my stool diary and said he wanted to wait until tomorrow before seeing about discharging me. I’m feeling pretty bumbed by this but I know I’m not reacting as quickly to things as they’d like so it’s the best place for me right now. I’m beginning to wonder if it’s possible to develop an immunity to things like prednisolone.

Quick update

The doctor came to see me this evening because I had trouble breathing again after dinner. She said it could have been brought on by my anxiety that the humira might stop working like the infliximab did. So she said to not think about it and try and relax. It still looks likes I’ll be going home tomorrow but they want to keep an eye on me until then, just in case. I hope everyone is having a relaxed evening.

One more night…

Because of my shortness of breath this morning, the doctors want to keep me in for another night just to make sure it’s nothing serious. They said there’s no clot or signs of infection but they want to be safe because of my heightened risk of infection. The joys of being on immunosuppressive meds.