I managed to go out twice in the last five days! I’m back to using my walking stick but I don’t think I’ll be needing it for as long this time. I can walk faster and for longer now verses last year, but I still need the extra support when going out for a long time. The stick also acts as a warning to others that I can’t move that quickly and they may need to be careful when moving around me. It doesn’t always work though as I have had a couple of people (noticeably older people) who have felt it would be fine to just knock me with their bags. Luckily, I was stationary and with someone else when this happened but still.
(Side note: It’s odd but I have found that the people who are the most considerate and take note of my stick are around the same age as me (30) or younger. I don’t mean this as a slight against older generations, it’s just something I’ve noticed.)
Anyway, in terms of eating, I think I’ve been over-estimating my guts capacity because I have had stomach cramps on and off for the last few days. It was worse yesterday (Tuesday) but it seems to have gone for now. I’m finding that the cramps are most severe if I eat too much stodgy food (like bread, batter, pastry ect) and this makes me feel sick. I’m going to try and eat four small meals a day instead of two big ones (I don’t eat breakfast). For today though, I’m only having snacks every now and then because my gut is still sore.
Spoken to the doctor. He’s going to give me more IV liquids overnight and get another abdominal xray done too just to make sure everything is ok. Fingers crossed it’s nothing serious.
So work wasn’t too bad this week so far; I found that applying heat to my cramping stomach helps it relax and, therefore, stop hurting. My manager, who gets cold very easily, uses adhesive heat pads on her stomach so she gave me one which meant I felt perfectly fine all day yesterday. I’m getting myself some heat pads as they will be great for the winter as well as my stomach cramps.
My upped dose of mercaptapurine seems to be working somewhat, and the colesevelam seems to be doing its job as well. I’m not entirely out of the woods but I do feel a little better in myself. Oh, and I finally got my cholecalciferol which I started yesterday so fingers crossed my hair will stop falling out and I won’t feel as tired anymore.
I’m off work today so I’m spending it with my sister and her fiance and we’re going to go bowling this afternoon. This evening we’re going out for a meal because it’s my mums birthday today. She’s unfortunately working all day but I’ll see her at the meal to give her her present. We’re going to TGIFridays; they’ve got a good gluten free menu and decent portions too. Here’s hoping it all goes well.
Been feeling pretty crap this week. It’s been just under two weeks since I finished the prednisolone and I knew I’d have a few withdrawal symptoms like maybe a bit of stomach pain, but I’m still feeling like I’m on the verge of a flare up which is only just being kept at bay by the mercaptapurine.
I’ve been going to bed early and practically falling asleep as soon as my head hits the pillow but when it’s time to get up, I feel like I’ve barely slept at all so I think I’m crashing.
I keep getting cramps in my left side which feels like period pain sometimes (even though it’s not because I’m on the Pill).
On top of that, everything I eat makes me bloat, regardless if it gluten free or not.
At least I only have one more day of work this week.
I have a Fifth Edition session on Sunday afternoon which I’m looking forward to but at the same time wish was another day because I just want to be able to sleep all day Sunday.
I tried a Rule of Crumb gluten-free chocolate muffin for lunch and it was great! Very yummy. Problem is my stomach has been hurting on and off all day so, aside from a yogurt, it’s the only thing I’ve eaten. I think the pain is because I’m only taking 5mg of prednisolone now so it may be that I don’t eat much else today.
Visited Lincoln Castle today. They had a farmers market in the grounds which made me quite hungry but I resisted the urge to buy a hot dog.
I’ve been having some stomach pain today so I’m thinking I should probably go easy at dinner tonight. Because I’m visiting my sister (and my parents have come up too), it means we’ll be going out for dinner tonight so I’ll need to see if wherever we go has a gluten-free menu so I don’t agitate my stomach any further. I go home tomorrow so I’d rather not be feeling ill; it’ll be a four hour drive which I don’t want to make any longer by needing to stop every five minutes for a bathroom break.