I’ve just seen my GI and he has said my liver biopsy hasn’t shown any signs of Primary Sclerosing Colangitis (yay!). It hasn’t shown anything else either so what’s caused my liver to double in size and be painful is still a mystery, but I’m hoping to get more answers when I see the liver consultant later this month. This hopefully means that my reversal can happen.
I am very relieved that it’s not PSC, because my reversal is looking more possible, and hoping it’s just a viral infection or something easily treatable. Fingers crossed!
So, I finally left the flat and went to a public place today for the first time in over a month! The only places I’ve been to since getting out of the hospital were back to the hospital to collect my meds and to my doctors to have stitches removed. It felt good to go outside and be somewhere that wasn’t medical, and where I could feel more normal.
I had a really nice Eggs Benedict (pouched eggs and bacon on an breakfast muffin) with tea, followed by a chocolate muffin. I am so happy to say that I could eat all that! A couple of months ago I wouldn’t have been able to eat any of it for fear of it causing me major pain and several dashes to the bathroom.
Although this whole stoma/surgery thing has been pretty scary and a bit of a steep learning curve (and still is), I am glad I had it done. I’m no longer in pain after eating, I don’t have to dash to the bathroom (making sure to take my phone because I know I’ll be in there for a long time), and I can eat most foods that I couldn’t before. There are, of course, some restrictions on what I can and can’t eat with my stoma, but nowhere near as many as before.
It’s odd, but this surgery really has given me a new lease on life. I know I’m still recovering and need to take it slow to ensure I don’t overdo it, but I can feel myself improving, if only a little, each day.
Feeling so very tired after the last three days at work but I’m also feeling positive that things are returning to some variation of normal. My symptoms are still present and, although they haven’t improved much since I left the hospital, they haven’t gotten any worse. I feel things are manageable at the moment but I’m keeping a very close eye on what my body is doing and how it’s reaction to food as well as my medications.
I’ve got one more day at work before I get a day off but if it’s anything like today was, I’ll be ok. I’m planning on sleeping most of Sunday so I’m ready for next week.