My Experience with Ulcerative Colitis – the good, the bad and the messy
En route to Winchester to meet up with work colleagues then we’re all going out for a meal. This’ll be the first time I’ve seen any of them (aside from my manager) in more than two months. I’m a little nervous but also looking forward to it.
I go back to work on Wednesday but only for a short, four-hour shift. I’m doing a gradual increase of hours each week so I don’t overdo it and end up needing time off again. I can’t wait for things to be back to normal.
I had to do another emergency bag change just now due to seepage. I knew it was going to do it because the bag didn’t feel right last night but I didn’t want to waste a bag, I guess, so I left it. No mess, though, it was easy to sort out. I just hope this isn’t going to be a common problem otherwise I might have change bag type and I don’t really want to do that because I like these bags.
So far, today has been ok. I’m tired but not overly so, which is good for me given how late in the day it is currently (4pm).
I decided to not cosplay today and I’ll admit I’m a lot more comfortable for it. Having my ostomy bag tucked into my waistband was ok and it wasn’t anywhere near as bad as I thought it might be but it was too hot and I kept worrying about possible leaks. The good thing about cosplaying as Misty though was that my Togepi plush acted as both a support for my stomach wheb I started to ache and as a barrier against crowds, so it wasn’t all bad. I don’t have it with me today but it’s not as busy as it was yesterday.
So, today was quite tiring; we did a lot of walking and I think, combined with yesterday, I may have overdone it a little. However, it was worth it. I’ve had a really great time so far and I’m still looking forward to tomorrow.
I still tucked my ostomy bag into my waistband today but I have found that it gets quite hot which made me think I’d had a leak at one point (even though the bag was fresh on this morning). I won’t be cosplaying tomorrow just because I can’t be bothered with it. It’s not like it’s a difficult costume to put on or anything but I just don’t want to wear it tomorrow. It also means I don’t have to tuck baggie in if I don’t want to – the costume somewhat demands it because the top I’ve got is too long and needs tucking in too.
I’ll be sure to take plenty of pictures and post as many as I can when I get home on Monday. For some reason, the app doesn’t like me posting pictures.
Spent the whole day with my ostomy bag tucked into my waistband. I’ve never done that before! It didn’t feel uncomfortable or make my bag stick out any more than usual (which is what I thought it would do) so I think I’ll be doing it more often.
Since getting home from the hospital, I’ve been trying to rebuild my stamina and leg strength with short walks around where I live. I’ve made huge progress, being able to walk for longer without experiencing any pain after, however, I do get stiff and start to hunch my shoulders and lean forward after a while. This means I slow down drastically and find it hard to keep walking unless I sit down for a while. My fiance suggested (as did a friend of mine a little while back) that I get a walking stick to see if it would help. I got this earlier this week while we were out in town (and I was feeling stiff at the time); the moment I started using it, I was upright and moving much faster and easier than I had been before.
I have no intention of using it all the time as I don’t want to become reliant on it, but I think it was a good idea getting it for use at least in the short term. I used it today to get to and from my doctors and I didn’t feel soar or stiff afterwards.
As I have every intention of going to the London Expo Comic Con at the end of this month, I will be taking it with me as I know I’ll be doing plenty of walking around (also, it’ll hopefully provide a sort of barrier between me and the crowds). So, if anyone is going to the London Expo this year and sees a Misty with a walking stick, it’s probably me.
I noticed a tiny bump just above my groin wound. It’s painless and doesn’t seem solid so it’s probably nothing to worry about, but I’m going to ask my stoma nurse about it anyway. I’ve got my second check up this afternoon so I can ask her about a few other things as well.
Got some clothes from a friend the other day. They fit really well and are so comfy, even with my bag. I’m really grateful to her; she even bought me a new skirt and top yesterday out of the blue! I feel a lot less self-conscious now when I go out because I have clothes that’ll cover my bag but not restrict it.
I’m having greek-style yoghurt with honey for breakfast today. My stoma has been very vocal recently so eating this should help reduce the amount of gas it produces.