Travelling with a J-Pouch part 2

As mentioned in my previous post, I travelled for around 5 hours on several trains to visit my sister earlier last week. The outward journey was fine with no issues when it came to needing the bathroom. The home-bound journey, however, was a little different because at the halfway point I started getting spasms. Thankfully, I was able to hold off needing to “go” until we reached London Waterloo station where we had about a 4omin wait for our train.

Ah, the Waterloo toilets. Another thing I wanted to mention in this post as they have… changed. Don’t get me wrong, not having to hunt through pocket fluff for 20p in order to do your business is wonderful, especially for people with IBD and similar conditions, but I can’t help but notice that the cleanliness of these toilets has dropped somewhat. There was a very strong smell as you approached that only got worse when you got inside, and they just seemed generally unclean. There was signage mentioning a plumbing issue so maybe that was the reason? I don’t travel to London enough to know but I do hope they can sort out whatever issues they are having and return the facilities to a more appealing state. I realise my complaints may seem a bit superficial but I am genuinely concerned about the spreading of infections like c.diff. I do not want to get that again as it was one of the reasons my colon had to be removed, and I don’t want to risk my jpouch failing.

On a lighter note, it seems that Nottingham has embraced Crohn’s & Colitis UK’s “Not Every Disability is Visible” campaign by putting up signage on all of their accessible rest rooms (or at least all the ones I saw anyway). I’ve started taking pictures of the supportive signs when I can so I can spread awareness on my instagram. It always makes me smile when I see the new signs.

And I’m home.

I made it home in one piece! The London Comic Con was amazing and, even though I’m so very tired from all that walking, it was worth it. I cosplayed as Misty from Pokemon for the first two day but chose to just wear civvies for the last day. This was mostly because I only had two yellow tops instead of three (and it was very warm all weekend) but also because I found that, although having my ostomy bag tucked into my waistband wasn’t uncomfortable, it was very hot under the bag so it did sometimes make me think it was full and/or leaking at times. So, for the last day, I just wore it untucked and with a cover on which was a bit cooler.

I got quite a few things from the sellers halls; everyone seemed to be doing lucky bags so I got one from Tofu Cute which had a load of Japanese sweets and drinks in it as well as a couple of plushies. I also got a print from one of the artists in the Comic Village, and my sister bought me a pair of handmade Studio Ghibli hair bows. I have every intention of going again next year but we’ll have to see how I am health-wise.

Thank you @thatchronicfeeling, this was helpful. I hadn’t thought about the entry queue; it’s usually quite long after advanced ticket entry (which we do have, thankfully). They had a seating area near the food stales last year so I’m hoping they’ll do something similar this year. I’ll keep an eye out for a map, sometimes they release it early so you get an idea of what there’ll be in the sellers halls. There are plenty of toilets as well and they have pretty big signs above them so I shouldn’t have any trouble finding one.

I highly recommend going to comic con if you can. The London one is huge; it takes up almost all of the London ExCel centre (which is a massive building), and is over three days now. I got my Totoro keyring from there a few years ago.