I spoke to my IBD nurse during my infusion and they’re going to change my infusions from influxamab to vedolizumab. She’s also going to arrange for a surgeon to talk to me about my options if the new infusion doesn’t work.

I spoke to my IBD nurse yesterday and she said to try a mild laxative like milk of magnesia. I gave it a go last night and it seems to do the trick but it’s too early to tell if it’s helped with the pain in my side. The nurse has also said someone will come talk to me on Monday when I have my next infusion. I’m apparently on the highest meds they can give me so they probably can’t do anything else except maybe change the frequency of my infusions. I guess I’ll find out Monday.

Day 1

Of not being on steroids. I’ve just had lunch and my stomach is hurting already. It’s done this a few times after eating this last week but it’s the only symptom so far. I hope this is just a adjustment thing and not the norm.

I’m continuing with the mesalazine and mercaptapurine, with influxamab infusions every eight weeks. I hope it’s enough. If not, I guess we’ll find out in a few days.

My infusion is almost done but I’m feeling quite tired. I’ve eaten a fair bit already (they gave out sandwiches today as well as tea and coffee) so I don’t think I’ll want much for dinner tonight.

I ended up eating quite a bit for dinner last night so I may have to be a bit careful for a few days incase I over eat and agitate my gut.

Infusion #3

I’m on my way to the hospital for my third infliximab infusion. It’ll be about three to four hours until I’m going home again but I’m sort of looking forward to it. I guess that’s a little odd but my sister said it’s probably because I feel better after.

I’ve remembered to bring food with me this time; my appointment is later in the day than my last one so I’ll be there over lunchtime.