I haven’t had much to report recently; I’m still waiting on a date for my surgery, and I’ve been feeling pretty good since going back to fulltime work. I’ve shifted my hours a bit so my work days are broken up so I don’t burn myself out too quickly. Other than being quite tired after work, I’m doing ok.
Your illness has not made you ugly
Your feeding tube has not made you ugly.
Your ostomy has not made you ugly
Your cane has not made you ugly
Your wheelchair has not made you ugly
Your oxygen has not made you ugly
Your wig/your bald head has not made you ugly
Your teeth or lack of has not made you ugly
Your body has not made you ugly
Your medications has not made you ugly
Your rashes, blemishes, scars and bruises has not made you ugly
Not being able to shower has not made you ugly
Flashbacks and paranoia has not made you ugly
Changes in your body and brain has not made you ugly
Having seizures has not made you ugly
Your trauma, depression and anxiety has not made you ugly
Your hallucinations, brain fog, and confusion has not made you ugly
Your lack of control over your body, brain, mood and life has not made you ugly.
Please never feel ashamed or ugly about what your illness has done to you, no matter what it has changed it can not change the beauty that you have, so even if you feel like youre not beautiful right now, please remember,
You are beautiful and your disability can never take that from you.
“You are beautiful and your disability can never take that from you.”
You are not stupid.
You are not ugly.
You are not worthless.
You are not weak.
You are not a burden.
Your mental illness is lying to you.
No you’re not bothering me. (Yes I’m serious.)
You’re not dumb.
You have great ideas.
Your smile isn’t ugly.
Neither is your laugh.
Yes people love you. No they’re not lying. Yes really.
YOU ARE NOT BOTHERING ME.
You don’t need to apologize, I actually AM very interested in our conversation.
YOU DON”T NEED TO APOLOGIZE FOR EXISTING.
in addition: yes i love you and your existence
Uhm… I really fucking needed to see this.
Yes, I am happy to hear from you.
You look nice today.
No, you aren’t being annoying.
Tell me more about the things you like, I’m interested in what you have to say.
If you changed your mind and can’t handle going out, we can hang out at home instead, I really don’t mind and I’m not mad at you.
Yes, I am really honestly happy that you’re here!
I think you’re pretty great actually.
Needed this and BOOSTING
ALL OF THIS
Side note: if you tell me to stop apologizing, I will apologize for apologizing so much
You don’t need to apologise for existing!
I love you. No, really.
Here’s a survey by Terry Wahls, M.D. (I was tagged by @natsufatsu) Thought I’d
tag some of the lovely people I follow. Feel free to share but don’t feel
obligated. @thatchronicfeeling @ibsprince @autistic-edser @spooniestrong
1. How do you feel today? Be specific.
Tired. Worn out,
even though I think I slept better last night. My body is aching, mainly my
legs. I want to do things but I get tired too quickly at the moment.
2. What did you do just for
I’m going to
make banana pancakes just for me. Doesn’t sound like much but I enjoy cooking
and it’s an easy recipe (eggs, mashed banana)
3. What did you eat today? How did it make you feel?
I’ve had a fortisip
so far. I’m really looking forward to the banana pancakes because I’ve never
had much success with pancakes even though I could eat them every day if my gut
4. Did you exercise today? What did you do? How did it feel?
The only exercise I’ve
managed today is taking the bins out. I live in a 1st floor flat,
only accessible by a metal set of stairs, and the bins are located at the other
end of my building. It’s not really that far but given how my legs are at the
moment, I think I’ve done well. I’m planning on going for short walks later
this week to build up my strength in time to return to work.
5. For whom or what are you grateful? What matters most in your
I am eternally
grateful for my fiancé. We’ve been together for almost seven years (engaged for
three), and despite a lot of my own personal issue with intimacy to begin with,
he’s stuck with me and never complained. This last year has proven how amazing
he is; he’s been my rock throughout all my medical emergencies, procedures and
flares from when the symptoms first appeared several years ago, through
diagnosis and beyond. He’s been there for all of my bad days and help me make
the most of all my good days. He’s suffered alongside me through three hospital
stays, having to see me on oxygen more than once, and the endless number of
needles and cannulas I’ve had stuck in me. I’m so grateful he exists and is
still by my side. I have no idea what I’d do if he was no long a part of my
6. Do you have a higher purpose or driving force in your life?
This will change, but think about what it is today.
What’s driving me
today is the need to get back on my feet. I want to get better, and stay
better, for as long as I can so I can enjoy my life and, hopefully, start a
family of my own one day.
7. How long have you been treated with conventional medicine? How
is it working for your condition?
I first started
on anti-inflammatory prescription medication (mesalazine) in April 2016. This
was just before my official diagnosis but after my first colonoscopy. I have
remained on this specific medication since. They have since added
immunosuppressant drugs (one of which (azathioprine) made me sick after a while
so they changed the type (mercaptopurine)). They tried infusion drugs (infliximab)
but when I proved unresponsive to that, they changed that to humira injection.
I have been on several prednisolone courses which have proven successful (although
the current one is a little slow working), as well as taking a lot of supplements
for calcium and vitamin D.
8. Do you remember the first time you ever had a symptom of your condition?
Tell the story.
It has been
several years since my symptoms first started but I thought nothing of it. I
remember pizza being a trigger so I tried to cut down on that, but I don’t
really remember the first instance. I remember the first time there was blood
though; that terrified me. I was feeling really lousy anyway, going to the
bathroom all day. We had just ordered a take away for dinner and I had gone to
the toilet and discovered blood. I came out and (stupidly) googled it. My fiancé
saw the results and told me to stop reading because at the bottom of the list
of potential reasons was Cancer. I was knelt on the floor crying for about five
minutes asking what was wrong with me. The next day, I got an emergency
appointment with my doctor who immediately asked for bloods to be done as well
as a stool sample from me. From that it was clear it wasn’t an infection so she
referred me to have a colonoscopy because she suspected it was either Crohn’s
or Colitis. The doctor who performed the scope said he suspected UC over CD so
I was referred again to a specialist who assessed me and determined it was UC.
9. What symptoms are most troublesome to you today?
The cramps have
been pretty bad today but nowhere near as bad as last week.
10. Do you blame yourself for things? Like what?
Yes. Even though I’m
trying to eat safe foods, I sometimes slip up and have something I’m not meant
to and that causes me pain, so I blame myself for my symptoms sometimes. I also
blame myself for any illness/stress in my families lives because I know my
parents worry about me a lot. My sister, who lives a long way away, worries too
and I hate that because she’s got enough going on in her life without having to
worry about me. And then there’s my fiancé who struggles to sleep most nights
and I don’t help by having to rush to the bathroom at all hours.
11. How would you describe your stress level today?
My stress is fairly
low today because I know I have time to do the important things (like book
appointments, collect medication from the pharmacy) later.
12. What could you do tomorrow to make it a better day than today?
I think tomorrow
would be better than today if I ate the right stuff, went for a walk, and
actually allowed myself to rest and do nothing for more than a few minutes.
this user is chronically ill
You’ve had to listen to someone talk about how they don’t take meds because they’re “all natural” and had to both keep a straight face and not slap someone
Even worse, last night I asked a co-worker how her friend that has colitis is doing, and if she is on meds and feeling better…..she kinda looked up and said “Ummm she’s anti-medication, but I’m not sure what she’s doing, she’s definitely feeling better though she wants to go out and drink!”
Jeez….oh to be young and stupid and then nearly die because you believed that “positive thinking” actually works for actual medical issues
I’ve been told more than once to “think positively” and I’ll feel better. It’s very hard not to slap people when they say stuff like that.
This is so important.