I’ve got a bed!

whatcanieat:

They’ve finally got me a bed and the doctor has already talked to me about what they want to do; they’re going to start me on intravenous steroids four times a day, take blood everyday I’m in here, and I need to keep a “stool chart”. I’m still on the mesalazine and mercaptopurine for now.

I’m really hoping to be out of here this time tomorrow but I have my doubts. I just hope the IV steroids work but I wonder if it’ll be a permanent thing or just while I’m in the hospital. Any thoughts? Has anyone else had this?

Four hours later…

whatcanieat:

I’m out and in recovery but they want to keep me in overnight – which means at least two nights in hospital – so they can have a go at getting my UC under control. They said my inflammation markers in my blood are up and my colon is very inflamed so clearly my meds either won’t work or will take too long to work (up to three months!) and they don’t want to wait that long.

This does put my colleagues at work under some extra stress as we’re low on staff this week as is and now they are even lower. I hope this doesn’t come back to bite me later but I also realise that my health is way more important than my work.

I’ll try to update as often as I can while I’m here.

whatcanieat:

Soup seems to be a good food at the moment so I’m settling for that for most of my meals. In other news, the hospital called back and they want me in tomorrow morning for a flexi. I’m hoping I won’t need sedation nor have to stay in overnight. The consultant said it might be an infection but they won’t know until they have a look.

This weekend has been the worst

whatcanieat:

I know it’s only Sunday morning, but it’s been awful; I felt as though I hadn’t slept yesterday but had to power through a whole day at work (still not sure how I did it), and my stomach and gut have been hurting nonstop all day yesterday as well as last night, meaning I have barely slept again. I think this is my first real flare up and I have no idea what to do. I’m in too much pain to sleep and I’ve not eaten much in fear of it coming back up again. My new meds aren’t working yet and the helpline isn’t open until tomorrow!

Last update before bed

whatcanieat:

Stayed for the whole show and thoroughly enjoyed it. Just a shame by body decided that I needed the toilet five minutes after leaving the theatre. I had to dash to the train station and use theirs. My wonderful fiancée is still wonderful and looked after me the short train journey home and made sure I had water to take pills with. Feeling really sleepy now though, so I’m off to bed. I’m working tomorrow but then I’m off for two days so I can catch up on my sleep then.

whatcanieat:

Despite feeling really lousy at work this morning, I’ve gone out to see a Burlesque show with my fiancée and some friends. I’m really enjoying it but I feel like I’m going to fall asleep soon so I might have to leave early. It’s a shame really but I’ll stay for as long as I can; I refuse to let my UC ruin such a good night.