whatcanieat:

I’m back to a full week of work this week, plus Sunday, so I’ll be working six days in a row. I don’t know how yet, but I will do this. I just need to make sure I go to bed early, eat the right things/enough, and try not to stress about anything.

I’m feeling a lot better as the cold seems to be going, and I think I slept ok last night. The cough is still here but nowhere near as bad as it was over the weekend. I’m going to try and have a good day.

whatcanieat:

I’m heading home now for a relaxing afternoon. I know it’s early, but I feel ok from the infusion so this could be the way forward. I know it means hospital visits every couple of months but I’m ok with that if it means I’ll be as close to normal as possible.

On a different note, I’m hungry so I might have a cooked lunch then a small dinner later tonight. I’m thinking stir-fried chicken with gluten free pasta and cheese. I won’t make a lot as the prednisolone is making me bloat enough as it is and I don’t want to make myself feel worse. But even if I have some left over, I can always have it for lunch tomorrow. Starting to feel a bit more positive, let’s hope it lasts

whatcanieat:

Another half an hour or so and I can go home and have something to eat. I’ve only had a cup of tea and some water so I’m pretty hungry.

kinasty:

urbanthropologie:

• sit in the sun without anything to do, feel the heat of the rays hit your skin, realize that this sunlight has travelled a very long way to reach you
• walk around barefoot and try to feel as much of the ground under your feet as you can, notice every rock and blade of grass
• sit quietly for a while and notice the touch of breath in your nostrils, feel how the air gets cooler as you inhale and warmer as you exhale
• drive around aimlessly and blast some of your favorite songs, scream/sing along to them and feel the vibrations of your favorite lyrics as they change the air in your throat and around you, feel that the music is healing you from the inside out
• stay away from alcohol or drugs for a few days, try to be as aware and present as you can in every moment, stop trying to numb or dull your senses
• eat a few meals without any distractions, notice every bite and taste every flavor that covers your tongue, be grateful for it all
• look up at the stars and the moon, understand how small we all are and how immense the universe is, realize what a miracle everything is, let your heart swell with amazement and admiration for life itself

ok this is actually cool bc doing all of this is a technique called “mindful thinking” that is extremely useful for people with anxiety disorders and dissociation disorders and stuff!

whatcanieat:

esprit-soleil:

Anyone with Crohn’s who’s chosen to go the Remicade infusion route: how is it? Is it worth the risks? Or do you think it’d be wiser to choose a more holistic route and risk needing surgery later? This is a huge decision and I feel really overwhelmed and confused so any and all opinions are welcome!

I’m just starting my infusions today. It’s a little daunting but if it helps, I’m willing to give it a go.

whatcanieat:

It’s early but I’m on my way to the hospital to have my second infliximab infusion. I hope it all goes well.

When I get home, I’ll try and make a few more bracelets but otherwise, my plans are to relax this afternoon. The weather has turned cold and damp so I’ll be staying in.

I think I slept quite well last night; no coughing fits or stomach cramps, so the cold may be on its way out (fingers crossed ).