Wishing everyone a spoon filled day. Remember to rest and take your meds.
Tag: ibd
I’ve been a bit self-destructive this week; eating things I probably shouldn’t and trying to ignore my stomach cramps when I know it doesn’t work like that. My symptoms aren’t getting worse but they aren’t going away either. I’m going to try harder to stick to a less destructive diet for the rest of the week (and probably longer) to try and keep myself out of the hospital for the remainder of the year.
So, I’m still flaring and there’s nothing they can do about it. I realise there’s not much they can do besides put me back on steroids, but they’ve made it pretty clear they really don’t want to do that unless they absolutely have to.
I’ve been told to call my IBD nurse again if my symptoms get worse but that’ll likely put me in hospital again. I don’t think I could handle being hospitalised this close to Christmas.
I’m feeling a bit better this morning. I slept better last night and I seem to have gain a bit of my appetite back. The downside is that my symptoms haven’t gone anywhere and feel like they might be slowly getting worse. I’ve had to provid some samples for my doctors because they want to rule out infection before looking into what other meds they can give me.
I’m also back at work today which I’m hoping won’t be too painful; it’s really cold at work which doesn’t help when I’m flaring but my manager has been quite understanding so far.
Flexi is over and done with but they didn’t find anything to warrant them doing anything. I’ve been told to go home and relax, and to call the helpline if things get worse.
I’m doing as I’ve been told and I’m trying to eat as normally as possible but I’m still flaring so that won’t be very easy.
I might take a nap later; the sedative hasn’t quite worn off yet and I’m tired and a little light headed from it still.
Morning of the flexi and I’m still nervous. Nervous and in pain from the “prep”. All I want to do now is sleep but I can’t because I’ve got to leave for the hospital in less than an hour. I also feel a little sick but I don’t think there’s anything left for me to throw up. I can tell this isn’t going to be a good day for me.
Night before the flexi and I’m a little nervous because I don’t want to a repeat of last time and end up in hospital for a week. I’m going to ask for a sedative this time because, although I shouldn’t need it, it was pretty painful last time without it.
Current flare foods include vegetable soup, gluten free porridge and homemade gluten free brownies. Oh, and tea.
Symptoms are slowly getting worse but at least my manager is understanding of my appointment tomorrow and shares my hatred of long tubes with cameras on the end.
I’ve spoken to the nurse and I’ve got to have another flexi on Thursday. I just really hope this doesn’t end with me in hospital again. They said it might be an infection, given the time of year, but they still want to see how my colitis is reacting to the meds, just in case.