Tag: hospital

I’ve called the helpline. I know they won’t really be able to do a lot because I have my appointment with my GI next Monday, but I just feel like I need to talk to a nurse; the last few days haven’t been good.
I have to have a blood test at the hospital too so I’m going to be busy this morning. I’m not planning on doing a lot this afternoon though; I’m not sleeping enough so I might try and have a nap after lunch.

Humira update #2

So, the delivery company have messed up; The hospital arranged for my humira to be delivered weeks ago but the only company in the UK that deals with delivering medication to patient’s homes has messed up somehow (They don’t even have me on their system!). I am now having to wait to see when the hospital can arrange for me to go in as an outpatient to have my next two loading doses at the hospital rather than at home. Very frustrated but at least I know what’s happened and don’t feel like I’ve been forgotten.

Humira update

So, I called the hospital to find out if there was a specific time my humira is meant to be delivered today. They said I should have been contacted by the health care company that deals with the deliveries of medication like humira but when I said I haven’t received any paperwork or phone calls, they said they’d look into it for me. I’m a little concerned that someone’s messed up and I won’t get my injections today. This wouldn’t be a problem if I wasn’t going to be at work for the rest of the week. Now, I’m just waiting for a call from either the hospital or the delivery company. I’m trying to stay positive; I don’t need another anxiety attack.

So, I still don’t have my meds from the hospital because they didn’t tell the day nurses it needed doing. I now need to call the ward again tomorrow to see if it’s all ready and then, hopefully, go and collect them all. It’s a good thing they had three days worth of prednisolone to give me yesterday otherwise I’d be in trouble. I just hope they also give me some fortisip because food is still a bit of a challenge for me.

I’m going home today!

They need to finalise my paperwork and meds so it’ll be another couple of hours but I’ll be sleeping in my own bed tonight.

The doctor said I need to take it easy for the next week or so because of, not just the physical illness, but also the stress of it all. It does mean another week off work but I think it’s what I need; to heal in my own space.

My pain has subsided now too so I’m feeling a lot better than I was this morning. It seems to be mornings are painful, regardless, but it goes after a little while. I’ll just have to keep myself dosed up on painkillers.

I may have jinxed myself…

The doctors came round this morning to see how I was feeling and check how many BM I’m having daily. He looked over my stool diary and said he wanted to wait until tomorrow before seeing about discharging me. I’m feeling pretty bumbed by this but I know I’m not reacting as quickly to things as they’d like so it’s the best place for me right now. I’m beginning to wonder if it’s possible to develop an immunity to things like prednisolone.

Quick update

The doctor came to see me this evening because I had trouble breathing again after dinner. She said it could have been brought on by my anxiety that the humira might stop working like the infliximab did. So she said to not think about it and try and relax. It still looks likes I’ll be going home tomorrow but they want to keep an eye on me until then, just in case. I hope everyone is having a relaxed evening.