My Experience with Ulcerative Colitis – the good, the bad and the messy
Calling all IBD/IBS sufferers!!!
I need your help! A friend of mine, who hasn’t got a diagnosis, is suffering with major IBD symptoms that flare when she’s stressed/travelling/driving ect. Has anyone ever used any kind of incontinence underwear that’s helped with accidents? Any suggestions are greatly appreciated! Thank you!
So, I asked my primary care doctor this morning what the actual plan was because it seems to me that my signs of improvement are purely because of the IVsteroids I’m currently on. I know from experience that every time I go onto them, I improve, taper the dose and finish the course, only to relapse and end up back in hospital a month or so later. He said this is possible and that they want to either continue me on the humira or switch me to vedolizumab. But before they can do any of that, they need to get me clear of the c. diff infection.
What I’m conflicted about is every trial I’ve gone on – infliximab, humira – hasn’t really worked and I’ve ended up relapsing. So, do I go with the trials or do I just request the surgical route? I’m really unsure and I’m frightened of what will happen in the next few months; I don’t want to end up in hospital yet again only for surgery to be my only option.
Please help me leave an abusive home. If anyone in the Upstate, SC area has a spare bedroom or a couch and can afford to let me crash, please let me know. Or please donate via my paypal at email@example.com. I have a job, but not currently any transportation. I don’t know where to go or what to do and I can’t take this anymore. Please, please help me. I know it’s been one thing after another, but I am at the lowest point in my life and I need help. The family I should be able to count on hates me, and my friends have gone silent.
I don’t know what to do. I just know that this isn’t working.
I’m desperate to leave an abusive situation without falling into financial ruin… please signal boost and donate if you can, I’d be happy to write fanfic for you
I’m so sorry this has happened to you! Please don’t give up! I’m sorry I can’t help you financially but I can at least reblog.
I have a new colleague at work who is about seven years younger than me and has been trying to advise me on my Ulcerative Colitis. She’s been saying I need to eat more, have breakfast (because it’s “the most important meal of the day”), have more fruit and veg (despite me telling her it’s bad for me when I’m flaring) and she has even said once that she think it’s “all in my head” and that I need to “think positively” to feel better. I want to tell her in the nicest way to back off but I don’t know how. I don’t want to get my manager involved but I can’t let my colleague keep thinking my UC is an open topic. She’s even said she wishes she could be like me and “not eat” so she could be skinny. It makes me kind of angry and annoyed that she thinks like this. I want to say something to put her straight but I don’t want to make thinks awkward at work. Our store is tiny so it’s not like I can avoid her.